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Cancer: Thyroid Message Board
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Old 07-02-2012, 10:57 PM   #1
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Confused, reoccurance or never gone

I had complete thyroid removal in January, after abnormal findings on FNA. Found cancer in the left lobe, went to Endo for RAI. We decided to hold off of RAI because I have young children and didn't want to expose them to anything. In February TG came back at 18, in May it was still 5. At that time doctor wanted to follow up with Ultrasound to see what was going on. TSH is still elevated as well 9.4 on 200MG Synthroid.

Had ultrasound today and Endo found masses of tissue or tumors in the thyroid bed, along with enlarge lymp nodes adjancent to the thyroid bed and even masses on both sides of my neck, no where near thyroid bed. Doctor said it was not good results and he his very concerned. He is going to do mulitple biopies in a few weeks to determine if it is cancer. May need to have complete neck disection and will need high dose RAI.

Question is I had an MRI completed prior to surgery and they said there was no lympnode involvement, there was also nothing found on previous ultrasound found outside of the thyroid, could the cancer metasized that quickly? I thought it was slow growing? I will discuss this with my doctor just didn't think of it at the time, has any one heard of thyroid cancer spreading like this within 6 months? Any info is helpful.

 
Old 07-03-2012, 07:38 AM   #2
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Re: Confused, reoccurance or never gone

Quote:
Originally Posted by klutz View Post
I had complete thyroid removal in January, after abnormal findings on FNA. Found cancer in the left lobe, went to Endo for RAI. We decided to hold off of RAI because I have young children and didn't want to expose them to anything. In February TG came back at 18, in May it was still 5. At that time doctor wanted to follow up with Ultrasound to see what was going on. TSH is still elevated as well 9.4 on 200MG Synthroid.

Had ultrasound today and Endo found masses of tissue or tumors in the thyroid bed, along with enlarge lymp nodes adjancent to the thyroid bed and even masses on both sides of my neck, no where near thyroid bed. Doctor said it was not good results and he his very concerned. He is going to do mulitple biopies in a few weeks to determine if it is cancer. May need to have complete neck disection and will need high dose RAI.

Question is I had an MRI completed prior to surgery and they said there was no lympnode involvement, there was also nothing found on previous ultrasound found outside of the thyroid, could the cancer metasized that quickly? I thought it was slow growing? I will discuss this with my doctor just didn't think of it at the time, has any one heard of thyroid cancer spreading like this within 6 months? Any info is helpful.
I have had several MRI's which didn't show cancer, even though I have TG after my thyroid removal/RAI. Did you have a neck US before your surgery? If not, I would assume you HAD this cancer in your neck. The RAI may have gotten rid of neck nodes and what was left in your thyroid bed. That is why we have RAI, to get rid of what is left.

What type of thyroid cancer do you have? There are several types that are more aggressive. According to what you have said, I think you always had it in your neck. You just got rid of what was in the thyroid. Sometimes, (in my case) the thyroid doesn't have much cancer, but it's found elsewhere in the neck/nodes.

 
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Old 07-03-2012, 10:32 AM   #3
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Re: Confused, reoccurance or never gone

Thanks for the response.

I was diagnosed with papillary cancer. I did have an ultrasound of my neck/thyroid prior to the surgery which was when the nodulas were discovered. I had several multiglandular goiters in the thyroid but nothing was noted in the neck. When I had the surgery to remove the thyroid they removed several lymph nodes on either side and nothing was found there either.

So is it thyroid cancer that spread to the neck? Or is it another type of cancer that spread to my thyroid?

Thanks again

 
Old 07-03-2012, 12:46 PM   #4
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Re: Confused, reoccurance or never gone

I want to think they missed the nodes while doing the US of your thyroid, as they were probably focused on only the thyroid at that point. I have never heard of garden variety papillary being aggressive that quickly. I don't think it's another cancer, just the thyroid cancer. I'm not surprised at the thyroid bed findings (since you didn't have RAI) or even lymph nodes. I am curious about the other masses in the neck. Did they give you a size? Please let us know what they find, because it helps the rest of us here to learn.

 
Old 07-12-2012, 11:05 AM   #5
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Re: Confused, reoccurance or never gone

This is an older thread, but I hope you update and let us know how you are. You can also send the pathology to another specialist, to determine if this is really a more aggressive cancer.

 
Old 08-03-2012, 09:38 AM   #6
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Re: Confused, reoccurance or never gone

Sorry, I've been dealing with all of this and did not see there was another response.

After the Ultrasound, my endo called and suggested that I schedule an appt with my surgeon, since at minimum he wanted to have they thyroid bed cleaned out. Left a message with the surgeon who, called me back within a hour. He was not happy with the findings and wanted to contact the Endo. They determined that they would biopsy one of the largest lymph nodes on the right side level 6 along the jugular chain, the next day. The surgeon also scheduled me for surgery.

I had the biopsy done and the test came back inconclusive. Yay! (sarcastic).
I then went and had a CT scan with contrast and there results show numerous enlarge nodules the largest at 2cm the average of 9mm. Met with the surgeon and still not sure what's going to take place and my surgery is in less than a week, I know for sure he is going in to clear out the thyroid bed of any remaining tissue, remove adjacent lymph nodes. He is also going level 6 left side along the jugular to remove the largest lymph node. He doesn't want to do any more than that, and I would rather have it all cleared out. I figure if the biopsy on the right side was all clear, but everything else is enlarged why mess around, you already have me cut open and up in there why keep our fingers crossed that all the other lymph nodes are not involved. After much debate, he is contacting my endo today to get the pictures from the ultrasound to see what is was found. And may do a neck dissection to clear the lymph nodes, we will discuss this the morning of surgery.

I guess right now we are on a hope and a prayer that he sees something either in the ultrasound pictures or when he is in there to get all these lymph nodes cleared out.

Maybe I am wrong with him wanting to be over aggressive. I just don't like going in for surgery after surgery.

 
Old 08-03-2012, 11:10 AM   #7
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Re: Confused, reoccurance or never gone

Quote:
Originally Posted by klutz View Post
Sorry, I've been dealing with all of this and did not see there was another response.

After the Ultrasound, my endo called and suggested that I schedule an appt with my surgeon, since at minimum he wanted to have they thyroid bed cleaned out. Left a message with the surgeon who, called me back within a hour. He was not happy with the findings and wanted to contact the Endo. They determined that they would biopsy one of the largest lymph nodes on the right side level 6 along the jugular chain, the next day. The surgeon also scheduled me for surgery.

I had the biopsy done and the test came back inconclusive. Yay! (sarcastic).
I then went and had a CT scan with contrast and there results show numerous enlarge nodules the largest at 2cm the average of 9mm. Met with the surgeon and still not sure what's going to take place and my surgery is in less than a week, I know for sure he is going in to clear out the thyroid bed of any remaining tissue, remove adjacent lymph nodes. He is also going level 6 left side along the jugular to remove the largest lymph node. He doesn't want to do any more than that, and I would rather have it all cleared out. I figure if the biopsy on the right side was all clear, but everything else is enlarged why mess around, you already have me cut open and up in there why keep our fingers crossed that all the other lymph nodes are not involved. After much debate, he is contacting my endo today to get the pictures from the ultrasound to see what is was found. And may do a neck dissection to clear the lymph nodes, we will discuss this the morning of surgery.

I guess right now we are on a hope and a prayer that he sees something either in the ultrasound pictures or when he is in there to get all these lymph nodes cleared out.

Maybe I am wrong with him wanting to be over aggressive. I just don't like going in for surgery after surgery.
I am so sorry you have to go through this again, but it sounds like everyone involved knows what they are doing. I do think this is the way to go. It just kills me....we were at my husband's endo this week, when he said how easy thyroid cancer is. Yeah, right. Please let us know how you do after the surgery. Best wishes to you!

 
Old 08-03-2012, 12:43 PM   #8
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Re: Confused, reoccurance or never gone

Thank you so much Linda. Yes, it's funny when I was first diagnoised, everyone said, "we I heard if you were going to get cancer, that's the best kind to get because it is so simple to treat." Well, I would prefer no cancer. It's simple if you only have it in your thyroid and have RAI treatment. But like in my case trying to avoid RAI treatment for the safety of my kids, makes it much more difficult. But I guess RAI is unavoidable at this point.

 
Old 08-05-2012, 09:31 AM   #9
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Re: Confused, reoccurance or never gone

I had very young children when I had thyroid cancer, and I had a very high RAI dosage---I stayed with my parents, and was away from them completely for a week, and then when I came home, I avoided close contact, they were still well cared for----it was a tough two weeks, but it was worth avoiding any exposure to them---pay people to watch them, whatever you have to do.

Good luck with all---no cancer is ever good---but you can be hopeful though, this will be a distant memory in a few years....you will do well!

 
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