I have recently been feeling tired and very cold all the time. Also, I have gained weight and can't lose it quickly like I have always been able to. Went to my doctor for thyroid work-up. She decided to be very thorough and do a complete work-up, including labs and an Ultrasound. Labs came back normal, but incidentally, they found a small nodule on my thyroid. The nodule is very small (5 MM). Usually, for a nodule so small, they would not really be worried about it and they would just watch it. The problem with my nodule is that it "complex". The US showed calcifications and internal blood flow. The calcifications are what the main concern is about-according to the surgeon.
So, she reffered my to a surgeon who decided that he would biopsy it. He wanted to have me sedated during the biopsy because the nodule is so small and if I was sedated,I would be still with no movement and there would be better chances of him being able to access the nodule. After the procedure, he said that he was able to get 3 samples. He still was not 100% sure that he had gotten a good sample because the nodule is so small, but he said he felt good about it.
The next day the results came back suspicious for malignancy (papillary).
The surgeon said he wants me to have a partial thyroidectomy. No frozen section because the nodule is so small, he would rather them just disect it at the lab because it would be a more accurate answer that way.
He also told me that even though the biopsy says suspicion of malignancy, that he looked at the slides of my cells and that he thinks that it looks like it more likely than not is papillary ca.
He reffered me to an oncologist who he says he hopes that i will be able to consult with before he does the procedure.
I just have a lot of questions-
-my doctor told me that after partial thryoidectomy (PT) if my other half compensates for hormone levels that I will not need synthroid. The surgeon says that I might need synthroid for "suppression therapy". Does anyone know anything about this?
-Next question is...should I consult an endocrinologist as well, even though my lab work is fine as of this point?
-Are there any other tests that anyone knows of that I should ask about to give me a better answer about if this is thyroid CA?
-More than anything, right now, I am a young (31), otherwise very healthy female. No other medical problems, no medicines, and I am just so scared that after this PT I may become completely out of whack. I am afraid I will gain a lot of weight, become depressed or have mood swings, and just overall fall into bad health. I work out regularly and take very good care of myself. I am a nurse and see very unhealthy, sick people everyday. Up until now, I have been very, very greatful to have good health and have never taken it for granted. I just am so afraid to develop any chronic medical problems because of this.
Is there anyone that can help by sharing there experiences, or maybe have answers to some of my questions?
The Following User Says Thank You to nimel526 For This Useful Post: Mandykat760 (11-30-2012)
For thyroid cancer issues, do not see an oncologist. You need an endocrinologist, they are the "oncologists" for thyroid cancer and they manage it. Preferably see one at a teaching hospital, or a cancer place like md anderson or sloane kettering.
What kind of surgeon is this? The surgeon doesn't seem to have enough thyroid experience. You need an ent/ontorogologist also at a major teaching hospital. You need one with major thyroid experience (In major cities such as NY or Boston or Washington you would be able to find a thyroid specialist). This is the doctor that will look at the pathology---or send it for a second opinion. Calcification and blood flow do not mean thyroid cancer---although in another part of your body it would be a red flag, less so for thyroid.
Also, in pappillary, if the papillary cells don't escape the nodule, these days, many hospitals such as sloane actually don't consider it cancer any more.
You need to be in better hands. I have a feeling this can be a watch and wait. It's not causing your symptoms. You should post your thyroid blood work on the thyroid board, and see if you really are hypothyroid as a separate issue.
I have suspicios papillary thyroid cancer. They found thanks to ultrasound and fna. It sounds like you need to see an ear nose and throat doctor at this stage, and endo doc. I am waiting on the appointment with the endo. It is 9/21.
Last edited by Missys mom; 10-29-2012 at 03:56 PM.
Almost ALL thyroid nodules are complex. All that means is its partially fluid and partially solid. They rarely find simple cysts on a thyroid (fluid only.) Don't be worried about the word "complex" all by itself. DO find all the answers and don't allow your treatment to be anything less then what you want. Be sure you're 100% satisfied when you're all finished.
Small multiple nodules were found on my daughters thyroid two years ago. At the time they said if they aspirated them, the needle may miss so we'll just have to watch them. Well, she had a baby after that and now, two years later, the mass is 3 centimeters in height and 5 centimeters wide and whatever the other number meant. Lol Whatever...Very large.
The large mass, plus a grouping of others as well, are on her right lobe and multiple nodules are on the left lobe. She got the brush off from her GP and couldn't get an endocrinologist appt for a month. One endo's office told her they were booked until January.
She has a huge mass and cant get in anywhere. Ticked me off. I called the cancer centers of America. They took all her information and she is forwarding them her radiology report and they'll fly both of us to their center in Illinois.
My daughter has difficulty swallowing right now and pain from her neck to her ears. She feels the enlargement in her lymp nodes and said "Mom, I guarantee you, they'll find it in my lymp nodes. I just know it."
She had her gallbladder out two years ago when they first found the nodules. then, we nearly lost her from post partum eclampsia which is very rare. It's like pre eclampsia but AFTER you have the baby.
She's been through so much and now has to deal with this but I HIGHLY recommend the cancer centers of America. Boy, do they hoof it for you. They are on the ball. If you cant get a doctors appointment in your area and you have a very suspicious ultrasound, call these guys. They'll get you in within a day or two. A week at the most.