My mom was diagnosed with papillary thyroid cancer in January 2012. She had total thyroidectomy in February, followed my Radioactive Iodine Treatment in March. Her Thyroglobulin went down to 1.1 by June, and then her August bloodwork showed that it raised to 1.6. Her neck ultrasound vame back normal. Momís endo wants to see her again in 2 months, and if Tg is still going up, she will have a full body scan.
I am so worried. Has anyone been in a similar situation? Any information will be appreciated.
It's strange that her tg never went to undetectable as it should have. Have they been keeping her tsh suppressed?
If you are in NY you should consider going to sloane---they have a lot of studies on thyroid and may even determine that there's nothing to worry about. It's hard to get in, so you have to start the process as soon as you can.
Also, did she have tg antibodies that were positive? If so, then tg isn't the best tumor marker for her. I don't think there is any emergency here, but she should follow up with the best team of doctors she can find. In the worst case, she may have a pet scan. This cancer is usually not deadly, nothing to get yourself too upset, just go through the process. You are a great daughter. With pappillary, a negative neck ultrasound is a really good sign.
That increase is probably nothing. The change could be due to technician error or interpretation. If it starts going up by 5 or more, then you can worry. Like Reese said, this type of cancer is usually manageble. The worst type of thyroid cancer does not produce TG, which is called undifferentiated. According to my endo who always makes the "best lists", my TG of 5 is nothing to worry about. It is very difficult for RAI to eradicate thyroid cancer in lymph nodes. If you read the thyroid cancer guidelines, you will find that roughly one third of us will have TG, where the source cannot be found. And most importantly, we LIVE with it.