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Cancer: Thyroid Message Board
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Old 09-23-2012, 11:09 AM   #1
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tazbeau HB User
What were your experiences?

I had a thyroidectomy 9/14/2012 (FVPCT) and am currently on Cytomel (50 mcg) until I have the RAI and scan done. I changed my dosing to 12.5 4X day thinking that might help things, probably didn't get that enough time and changed it to 25 mcg in am; 12.5 mcg mid-day and bedtime. I am taking supplemental Calcium but the obvious signs of need are diminishing (face and hand tingling - so I am easing off the Ca+)

Currently I have ringing in my ears that is horrible. It did ease one day, but I can't correlate it to anything I changed. I also have developed headaches. I had migraines when I was young following a concussion, but never since until now. I was not hypothyroid with the cancer, but Hashimoto's was seen to be well underway. (I just saw a Rhuemy as Sjogrens or SLE.. UGH! is suspected. Waiting for results of tests.)

The worst thing is that I can't think. I take notes all the time, can't remember anything, panic, my decision making is all but gone, and can't sleep for more than 30-45 minutes at a time. I realize there is cause and effect in not sleeping and all the other things..but some of it stands on its own. I literally stand paralyzed with indecision.

So has anyone else dealt with ears ringing, headaches and a brain-ectomy, and if so how did you deal with it? What works? How much of it goes away when you get regulated on Synthroid.. (or whatever)?

 
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mom2twogirls (09-30-2012)
Old 09-30-2012, 06:38 PM   #2
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Re: What were your experiences?

It will get better. I had my TT on 9/5/12 and was in the hospital for 8 days due to calcium issues. I went straight on Synthroid .75 and then my surgeon upped it to 1.00 when I came home. I haven't had RAI and don't know if I will. I don't have an ENDO appt. until after Thanksgiving!!!! Apparently, there isn't enough for the area. I wish you the best that all will be straighten out quickly!

 
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Old 10-02-2012, 07:47 AM   #3
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Linda1652 HB UserLinda1652 HB UserLinda1652 HB UserLinda1652 HB UserLinda1652 HB UserLinda1652 HB User
Re: What were your experiences?

The cytomel is only to give you energy while you are off synthroid. Your ears are ringing because you are taking too much. Try 1/2 pill in the a.m. and the other NO later than 3 p.m. (I just checked my old pill bottle--and that was the dose I was prescribed---50/day. ) I didn't have those issues. At any rate, it won't hurt you to take a little less and seriously--not past 3 or you won't sleep.

 
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