What were your symptoms and how big was your tumor or tumors?
Start menustration at 11yrs. Always irregular until late twenties, when completely stopped due to Pit tumor. Had surgery at 29, and took med for 10 yrs...so I had periods. Stopped meds, lost periods. Had very few periods between 40 yrs and 50 yrs. Had hot flashes last half of 40s. By 50 thought I was menopausal, but blood test said no. At 51 started bleeding EVERYDAY, but smaller then a dime, and this went on till I turned 53 was diagnosed and had surgery. No pain.
Size, I'm really ignorant about size. Its a mental block thing....was this way about pit tumor too. Don't care...it was on path report that Gyn/oncologist gave me, but I'm sorry I don't remember. And do you know if uterine cancer is likely to be genetic?
I have no idea. But mom has never had cancer, nor did grandparents. But her unidentical twin had ovarian cancer. But my father had THREE PRIMARY cancers. Primary means that they were not connected. Three separate cancers. One was Prostate. And do you know anything about endometrial cells being found on Pap tests?
No. But you also mention lousy gyn....I could write a book on lousy gyns. In my late 20s when I lost my period for 2.5yrs. and had other symptoms, I went to FIVE GYNS. All patronized me and said that I was worrying too much and it was all in my head. I went to ONE Endocrinologist and he found what was in my head.
When I retrieved my records from the FIVE Gyns....they had the same blood work showng an unusually high Prolactin level. They just didn't find it important enough to tell me; refer me or anything.
But being a woman I still knew that I would always need to see a gyn. So I thought that I found a really good woman gyn. Went to her for years and sent many women to her.
When Endocrinologist, who is my regular doctor too, found blood in my urine, he told me to go immediately to my gyn. He also had found that I was in the menopause. I left his building and went directly to gyn to make an appt.
I went two days later and they had a midwife do my paps/pelvic. I told her and the staff that I was bleeding and that the female gyn was my regular gyn. The midwife needed my gyn to assist and I told her that I was bleeding everyday for 6 months at the time. All she said to me was, what happened to your hands. I lost pigmentation from stupid pit tumor and the rest of my hands were tan.
2 weeks after gyn appt they sent me a postcard saying that paps was negative. THATS IT.
All along I don't have med ins, 'cause I'm not working and I'm too fat to get ins on my own. But if I worked these same ins co would cover me no questions asked. So gyn and Endocrinologist I paid cash because this was important. Oh I'm a 24/7 caregiver to my 94 yr old Alzheimer mom....so she paid.
So 10 mos later I went to the County and their wonderful male gyn LISTENED to me and found it by running standard test.
After surgery and during recovery, I wrote the email from hell to the female gyn............never heard a word.
Unfortunately though some doctors and nurses become jaded or somewhat cold to protect themselves from being emotional. Yrs ago when I had my first MRI, and it was of the brain, so they put your head in a box and you are wrapped like a mummy. Then the machine slides you into the belly of the machine and you listen to 40 mins of banging. The staff was HORRENDOUS. I have had three and the other two the staff was great and the experience was much better.
It may take your Gyn to be in your shoes before she ever gets it. So she deserves a very well written letter of enlightenment.