Hello all, I am new to these forums. I have Stage I (no idea of the letter - I think it is B) endometrial cancer. I was bleeding a lot, in pain, and tired all the time before my diagnosis. Now, I am undergoing hormone therapy because I am starting a new family in a year and wish to have children with the man of my dreams.
Here is my current treatment: Provera (20 mg twice a day); Depo-Provera injections every other month; and a recent Mirena IUD insertion. I have a biopsy on January 7th. This treatment is supposed to go on for a year, though, which will be up in Sept./Oct. of next year (alternating biopsies/D&C's every 3 months). Things weren't great, but they were bearable before the Mirena insertion. The Mirena insertion turned my world upside down. After the insertion, I immediately became ill, hot and cold at the same time, shaky, and pale. It lasted for a good hour, during which I decided I would not be doing treatments anymore (but I got over that, just giving you an idea of how bad it was). Since then (Oct. 1st), I have been having extreme cramps that go from fists to sharp stabs. I cannot walk or stand for long amounts of time, and so far have been on self-prescribed bedrest. The doc did give me Ibuprofen and Vicoden (and it takes two at a time) for the pain, but he keeps saying "it's just cramps" and that this is normal. On top of that, I get severely nauseous/sick/gassy/diarrhea on a multiple times a day basis which was already happening anyway, but now is magnified.
I am grateful to be alive and know this is all necessary; however, my family and I are struggling to understand why I am being affected so severely. I am independent, very, and hate having to be cared for; and feel I need to justify what is happening so they know that it is a valid situation. Does anyone else know of a similar occurrence or where I can find documentation of such? Or anything?