Malignant Paraganglioma anyone? - Cancer Message Board

TereB52 · 02-13-2004, 02:03 PM

I have a glomus tumor in my head that became malignant after radiation. It has spread to my spine, pelvis and lungs. I need information about possible cures or anything that can help. Any info will be greatly appreciated!

zuzu8 · 02-13-2004, 07:58 PM

Have you talked to your oncologists about the possibility of getting you into a clinical trial?
Here are two main clinical trial resources published on MEDLINE's website (permission to post from mods).

[url]http://www.rtog.org/faqpatient.html[/url]

..or from The National Institutes of Health (NIH):

[url]http://www.clinicaltrials.gov/ct[/url]

Hope this might be of some help.
Good luck!
zuzu xxx