Thanks for your reply. I hope all is well. Sorry, to hear about the undiagnosis. I know how it feels to have to wait and be told there is something wrong but they dont know what it is. I have actually had 3 docs say to me that their diagnosis was "Its a symptom of whatever You have",can u beleive that?
Have the docs said if there was anything else, that the elevated epenephirine could be? I am still very wary about my diagnosis considering they have yet to find them after an MRI and a abdominal U/S, now they plan to run a MIBG (I think that what its called) and an all over body scan. They are still persistent that they think PHEO is what I have. They say, that they think, the Pheos are very small and spread thoughout my body.
Thanks for the sites. They were very helpful! I still have a hard time understanding it. I would love for them to say see this IS what u have and know we can deal with it like this..... I truly understand how frustrating it can be to NOT know.
Did you have any risk factors, other than H/BP?
What is your diagnosis on your heart disorder? Do they think that it is the Pheo causing that?
Please Let me know how you are doing. I would love to hear from you.
Best Wishes to All,
P.S. As you can tell I have a real hard time sleeping to. My freinds call me Insomni.
[This message has been edited by fadeawhile (edited 04-16-2003).]