My husband has been diagnosed with Neuroendocrine cancer. It was first caught in November by accident, during a routing physical. His Liver was swollen, and after a sonogram, found to have several liesions. After an Otreocide Scan, he has been found to have a small (2.1 cm) tumor on the left lung. All blood work and other tests are normal. He has no symptoms, and is not sick.
They started him on Sandostatin, once a month, just a few weeks ago. I have read everything I can, and I still have questions:
1. As sandostatin retards the growth hormone, why can I not find any side effects about having less growth hormone? Will he age faster? Will his organs eventually give out? What effects, other than upset stomache and diabetes issues are there? Growth hormones have great effects on aging, so why wouldn't less of them have a rapid aging effect?
2. Everything I have read about Sandostatin is that it treats the symptoms, but my husband doesn't HAVE any symptoms! Doctor says it retards the growth of the tumor. Really? I cannot find ANYTHING on that possible use!
3. Although it is small, it has metastisized in his liver. Does this automatically make it stage 4? Also, I cannot get a straight answer on the survival rates. Some say 2 - 5 years, others 20 or more. What is realistic? Does the fact that it is in the liver reduce the life expectancy? or, since it is so small, should we not worry?
4. Can Sandostatin really keep it at bay for many years? What about the liver? It is all over his liver. What is the prognosis for that? Does Sandostatin stop those tumors, too? Or just the primary?
Someone, please help! I don't know what to believe!