Re: Liposarcoma diagnosis
Hi there rick :-)
Glad to meet you, although I wish it wasn't under the circumstances.
I am a 16 year survivor of liposarcoma. The tumor was in my left thigh and I did lose a major muscle there as well as a large portion of the thigh. However, I was fortunate not to lose the leg and it functions today, although I do deal with some pain issues.
Like you, my surgeon thought it was only a fatty tumor. The biopsy actually had to be sent to the Army in Washington, DC for diagnosis as none of the 6 lab guys here had ever seen sarcoma and were not sure about it. Took 3 and a half weeks for diagnosis.
I ended up being treated at Mass General Hospital. An oncology surgeon as well as a plastic surgeon worked on me. Much, much wider margins were taken and ultimately muscle was cut from under my breast and stomach to flip down into the leg so it would heal. It was quite cutting edge at the time. There were only 2 sarcoma clinics in the world at that time... Mass General and MD Anderson down in Texas. There was only one small study that had been done in Europe concerning sarcoma at that time. In the ensuing 16 years many sarcoma centers have come to be and new and better treatments are constantly emerging.
I guess if I were to offer any advice, it would be that once the sarcoma diagnosis is made that the patient be treated at a Sarcoma Center by an oncology surgeon and team of other specialists who have worked with sarcoma ( radiologists, oncologists for chemo, etc).
The order of treatment for me was radiation, then the second surgery and then chemo. At that time, as there really was not much infor on sacomas, I was given chemo that was standard at the time for lung cancer. I am sure today that more refined and specialized chemo is used. The chemo for me was actually an adjunct treatment. Six rounds were proposed, but I stopped at four. I had other issues going on and I could not physically handle any more. Looks like four rounds did the trick as I am free of cancer sixteen years later. Not sure what the treatment would be for you in today's atmosphere.
Any questions I might be able to answer I would be honored to do so.
With all best wishes
Last edited by Administrator; 11-30-2012 at 09:56 PM.