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Old 02-09-2013, 09:59 AM   #1
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new here - possible sarcoma???

Hello,

I have a lump on my left outer thigh. It is right above my knee.It is kinda in the dip between the main muscle and the knee. I have had lumps and bumps on my body as far as I can remember. I have several fatty tumors, a couple palpable lymph nodes and other bumps. All are small (1 cm or smaller). Drs never seem concerned and I have had some of these for 3+ years so I haven't been to concerned. However, just four days ago I noticed the lump on my leg. It is painless and about 1.5 cm (that I can tell). It is like some one cut off the top quarter of a bounce ball and put in my thigh muscle. It doesn't seem to large in regards to height. I initially thought it was a knot because it is not well defined like some of the lymph nodes and other bumps. It feels more firm and connected to underlying tissue. I am medium build but not to active at this point in time. Work at a desk and spend time with my wife and kids. Not much time to hit the gym so I don't think it is a knot or anything like that. I have an appointment with a general surgeon on Monday but this is consuming me right now. I read stories on the net and freak out. All I think about is not being around for my young kids. Scares the hell out of me. I understand from reading that lipomas are movable and for the most part soft. This is firm and connected. Has anyone had something like this that turned out to be nothing serious?

 
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Old 02-11-2013, 03:12 PM   #2
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Re: new here - possible sarcoma???

Saw my general surgeon today. He said he can't tell for sure by feeling it. He said he will cut it out and see what it is. He can do it in the office so it will be under local which will be nice. I hate GA. I think while I am there I will have him remove a lymph node above my elbow that has been swollen since early 2010. I am happy he didn't just brush me off like the rest of the Drs I have been too. I am also terrified. I don't want to here the news if it turns out to be cancer. I have my second child due at the beginning of March and now it may get spoiled by crappy news if my pathology reports come back as bad news.

 
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Old 02-11-2013, 07:10 PM   #3
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Re: new here - possible sarcoma???

For anyone with any knowledge on this......I was doing some reading and one website said that an oncologist surgeon should do the biopsy. is this true? I can get in with my surgeon in two weeks to get a biopsy or even my bro-in-law who is a plastic surgeon who could cut this out just to get a diagnosis of what this is. Should I get referred or can I have just any surgeon remove the mass initially and go from there? Should I request imaging before hand? Please any advice would be nice.

 
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Old 02-11-2013, 08:11 PM   #4
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Re: new here - possible sarcoma???

Hello There

I truly hope this is just a fatty tumor and will be sending up some prayer on your behalf that it is only that.

I am going to share my own experience with you simply as a reference for you. ;-)

Many years back, I also found a lump. It was in my left thigh, inner part. I had my family doctor check it and he sent me immediately to a general surgeon. This surgeon is a great guy. He had the imaging done the next day and scheduled surgery to remove the lump within the week. Like your surgeon, he also was not sure what it was, leaning mostly towards a fatty tumor. Well, the biopsy came back and it turned out it was liposarcoma.

I ended up in a Sarcoma Clinic in Boston for a second much larger limb saving surgery, done by an Oncology surgical team. The surgery was more complicated this time because the Oncology team explained it needed to be a vertical cuting and a horizontal cut had been done by the General surgeon.

I have never, ever faulted the General surgeon and, in fact, he has operated on me a few times since. However, I now know that whenever there is any concern, even an iota, that a lump may be cancer, it is much, much wiser to have an Oncology surgeon doing the work. They are more versed in cancer... like that verical VS horizntal cutting.

My advice from my own experience is to seek out an Oncology surgeon. before I had the first surgery, I didn't even know that specialist existed. We live and learn. :-) On the chance that it may be cancerous, take the safer course with an Oncolgy surgical specialist.

I am wishing you well and while I can not tell you not to have some fear (who doesn't in these situations?/), I can tell you that I am alive and well 16 years later.

Hugs
reach

 
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Old 02-11-2013, 09:13 PM   #5
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Re: new here - possible sarcoma???

Thanks and thanks for a reply. How big was your initial lump if you do not mind me asking? Mine is about 1.5 cm or so. Should I contact my surgeon to put me in touch with a onc surgeon? This is really taking the breath out of me. I have been focused on the coming of my 2nd child and this just derailed everything. I down play my concerns with my wife because she does not need that stress right now. I keep praying it will go away by itself. I will keep this thread updated as things progress. I am glad you are doing well. Takre care.

I
Quote:
Originally Posted by reachout View Post
Hello There

I truly hope this is just a fatty tumor and will be sending up some prayer on your behalf that it is only that.

I am going to share my own experience with you simply as a reference for you. ;-)

Many years back, I also found a lump. It was in my left thigh, inner part. I had my family doctor check it and he sent me immediately to a general surgeon. This surgeon is a great guy. He had the imaging done the next day and scheduled surgery to remove the lump within the week. Like your surgeon, he also was not sure what it was, leaning mostly towards a fatty tumor. Well, the biopsy came back and it turned out it was liposarcoma.

I ended up in a Sarcoma Clinic in Boston for a second much larger limb saving surgery, done by an Oncology surgical team. The surgery was more complicated this time because the Oncology team explained it needed to be a vertical cuting and a horizontal cut had been done by the General surgeon.

I have never, ever faulted the General surgeon and, in fact, he has operated on me a few times since. However, I now know that whenever there is any concern, even an iota, that a lump may be cancer, it is much, much wiser to have an Oncology surgeon doing the work. They are more versed in cancer... like that verical VS horizntal cutting.

My advice from my own experience is to seek out an Oncology surgeon. before I had the first surgery, I didn't even know that specialist existed. We live and learn. :-) On the chance that it may be cancerous, take the safer course with an Oncolgy surgical specialist.

I am wishing you well and while I can not tell you not to have some fear (who doesn't in these situations?/), I can tell you that I am alive and well 16 years later.

Hugs
reach

 
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Old 02-12-2013, 04:49 PM   #6
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Re: new here - possible sarcoma???

Well I contacted my surgeon and he assured me that he has removed many lumps including some sarcomas in the past. He said he will make it clean. he said he really doesn't think it is one but wont know for sure until it comes out. He said after he removes he may be able to tell me what it is when he looks at it. Keeping my fingers crossed. Surgery is scheduled for this upcoming Monday. It is weird I want it out and I want to get a clean report on it but I don't want to hear it if it is bad news. Makes no sense. You'd think that if it was bad news you would want to hear it so you can take appropriate steps to cure it. The brain works in funny ways.

 
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Old 02-12-2013, 06:31 PM   #7
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Re: new here - possible sarcoma???

Hi

Truthfully, I would be totally upfront with your surgeon and just tell him you would feel better having an Oncology Surgeon do the work since the possibilty is there that it could be cancerous. He should understand, but even if he does not, it is your life, my friend, and we always want the best shot possible in these types of situations. e courteous, but be firm.

Not sure of the initial size of the tumor, but by the time I had it checked, it was 16cm. I had fallen and thought it was a pulled muscle. Then it the course of of just a couple of weeks, it was noticable just standing looking in the mirror. It had gotten aggressive and grown really quickly. The team at Mass General in Boston told me the guide they were using (at that time) was over 8cm and chemo would be included.

Whatever course of action you decide to take, I will root for you all the way. Don't forget, either, that it could merely be a fatty tumor.

Take care
In my prayers
reach

 
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Old 02-17-2013, 06:16 PM   #8
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Re: new here - possible sarcoma???

Well I am off to see surgeons tomorrow. I will post back and let all know what way I am going about this. Hoping it is nothing. Keep your fingers crossed for me please.

 
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Old 02-17-2013, 11:25 PM   #9
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Re: new here - possible sarcoma???

Hi There

Hoping along with you that it is nothing.

Let us know the outcome.

Hopeful
reach

 
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Old 02-18-2013, 04:26 PM   #10
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Re: new here - possible sarcoma???

Well I am back. It took only about 2 minutes to give me the injection and take out the mass. Surgeon said that is good. He said the easier it is for him to remove usually means it is better for the patient. He said in his opinion it looks like a lipoma. He said it was a weird spot for one but it looked like fatty tissue. I will get a pathology report back sometime this week and know for sure but the surgeon said he is not worried about it. I will post findings of pathology report when I get them.

On a side note it is really weird to watch a surgeon cut into you and not be able to feel it.

Thanks for talking with me Reach. It is nice to have another person to help ease my mind. I really appreciate it.

 
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Old 02-18-2013, 05:36 PM   #11
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Re: new here - possible sarcoma???

Hi

Sounding encouraging. :-)

Waiting to hear the biopsy results. Any of us who have had to wait out biopsy results have a connection. Glad to talk with you.

With all hope
reach

PS You are a MUCH braver soul than me to watch the surgeon work on you! Fortunately, I was put under. Chicken here. LOL

 
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Old 02-21-2013, 07:16 PM   #12
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Re: new here - possible sarcoma???

I received the pathology report this afternoon. Nurse said the Dr told her to tell me that the path report came back and said the mass removed from thigh "was consistent with benign a benign lipoma." I guess I am good to go for sure.

Reach, again, I would like to thank you for talking with me. It was very helpful to just hear your story.

 
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Old 02-21-2013, 07:27 PM   #13
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Re: new here - possible sarcoma???

Hey

SUPER good news!!!

Sorry you had to go through a bit of surgery, but glad you can beath easy and enjoy your days again. No more load to carry in the back (and front!) of your mind.

Happy to have met you and share a bit together. ;-)

Stay well
reach

 
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