It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 06-20-2013, 10:17 AM   #1
Inactive
(female)
 
Join Date: Jun 2013
Posts: 1
cmefino85 HB User
10 yr old son with desmoid fibromatosis

Hello everyone,

I'm new to these types of forums but looking for a little bit of support from others that have been in the same situation.

I just got the biopsy results last night for my ten year old son. It is confirmed that he has a desmoid fibromatosis on the right posterior lateral chest wall surrounding the 9th, 10th, and 11th ribs. We are being seen at Johns Hopkins Pediatric Oncology in Baltimore. The next step is to meet with the pediatric surgeon to discuss removal of the tumor and set up the surgery date. I've done as much research on this thing as I can and keep getting discouraged when I read others stories. What's recovery like from the removal of something like this? Are they going to have to remove ribs? Do they replace the ribs with anything else? I'm so confused.

 
Reply With Quote
Old 06-23-2013, 04:53 PM   #2
Newbie
(female)
 
Join Date: Jan 2011
Location: Syracuse
Posts: 2
syrlisa HB User
Re: 10 yr old son with desmoid fibromatosis

Just want to let you know my mom had a Desmoid tumor the size of a large grapefruit removed from her chest 7 years ago. She is completely healthy now. She goes for scans every year and it is completely gone. Please find comfort in this.

 
Reply With Quote
Sponsors Lightbulb
   
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Aspirin
Ativan
Ibuprofen
Morphine
Potassium
  Synthroid
Tylenol
Vicodin
Xanax
Zofran




TOP THANKED CONTRIBUTORS



SamQKitty (14), jennybyc (3), Administrator (2), Rainyday100 (2), ladybud (2), super girl (1), J.D. (1), ibelieve (1), mel_19_06 (1), Amy26 (1)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (856), janewhite1 (823), Titchou (771), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (655), BlueSkies14 (610)



All times are GMT -7. The time now is 10:19 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!