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Old 04-19-2008, 10:16 PM   #1
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Question about Lyme, candida and "herx"

Hi all,

I'm 22 years old, female. I've been sick since July 2007. It started very suddenly overnight with heart palpitations, dizziness and muscle twitching. Over the next week or two I noticed muscle aches, prolonged dizziness/lightheadedness, muscle twitches and cramps, low fevers (99-ish) and very pronounced fatigue. The fatigue and fevers seemed to get better slowly over the summer but the dizziness and muscle aches in the neck and shoulders persisted along with some joint pain mostly in the wrists/fingers/elbows. Muscle and joint pain seem to wax and wane in roughly month-long cycles. Dizziness/woozy feeling comes whenever/wherever but seems to get worse with heat or sunlight and at the and of a period of neck/shoulder pain. I now get pins and needles in the hands after a hot shower.

I live in Cambridge MA and had gone berry-picking with friends in Ipswich, MA about a week before all of this began - I understand the Crane Beach area is a hotbed for Lyme(?)

Doctors haven't been much of a help to me at all. I've had three blood tests for Lyme (negative) along with a lot of autoimmune stuff and no abnormal results. Consequently I've been told I have anything from generalized anxiety, fibromyalgia, chronic fatigue, depression, irregular migraines, or just plain full-blown hypochondria. I don't believe in the theory that it's all in my head, and my family and friends who know me well know that something is wrong. Enough random people told me my symptoms "sound like Lyme" that I sought out an infectious disease doc. in Longmeadow MA who thinks I have Lyme in spite of negative test results.

Currently I've been on doxycycline oral 100mg/day for about 4 days followed by 200mg/day for 5 days so far. The first 5 or 6 days of this were great - aside from a little nausea-- the dizziness/"out of it" feeling seemed completely gone. Then yesterday I suddenly started feeling very dizzy again, and it's been with me almost all day today, much worse than usual. I also noticed that my tongue, which had had some light whiteish yellow coating at the back for many months, seemed to have a little more coating on it and looked a bit gray. My hands, feet and nose started to get a weird, tingling feeling (almost like being sprayed with little drops of Icy-Hot or something) within seconds of going outside or washing in warm water.

I read up on candida on the internet, and am a little worried. It seems like Candida and Lyme have many of the same symptoms and no definite tests (in my case) either way, but treatment of one can make the other worse. I am not sure if my sudden worsening of the "out of it" dizzy/lightheaded feeling along with the tingling is this "herx" reaction in response to doxy, or yeast getting out of control. Can anyone offer any insight? For the folks with Lyme who have braved this very long post, do my symptoms sound Lyme-like enough that it makes sense to experiment with antibiotics without a positive test result? Thanks!

 
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Old 04-20-2008, 09:02 AM   #2
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Re: Question about Lyme, candida and "herx"

hi, I'm on the South Shore and have had Lyme for almost 9 years. Your symptoms definately match up with a lot of common ones. Those pins and needles thing stink!

There is a doctor in MA named Dr. Sam Donta. Some people on this board see him and I believe he takes insurance like a lot of people don't. Due to a variety of reasons, I see an LLMD in Wilton CT instead named Dr. Steven Phillips. Do a search on this board for those DRs. Seeing an LLMD (Lyme literate MD) is very important as most infectious disease people and Primary care folks don't have the knowledge to treat agressively. You're at an early stage so it's important to nip it in the bud.


 
Old 04-20-2008, 02:20 PM   #3
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Re: Question about Lyme, candida and "herx"

Have you been tested for MS?

 
Old 04-20-2008, 04:18 PM   #4
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Re: Question about Lyme, candida and "herx"

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Originally Posted by cmspain View Post
Have you been tested for MS?
WHat does MS testing entail? I had an MRI of the brain back in August 2007 which was reported to me as "normal" -- though a few weeks ago a new neuro told me it was technically abnormal (there was a "spot in the left hemisphere") but probably nothing to get upset about. I had more MRI's last week for brain, c-spine and t-spine but...due to administrative incompetence and some huge snafu with the doctor changing her mind and cancelling things, then changing her mind and un-cancelling...I doubt I will ever hear results from that.

Is there anything they can do or look for besides MRI?

 
Old 04-20-2008, 08:45 PM   #5
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Re: Question about Lyme, candida and "herx"

Here's what I would do if I were you. I'd start at the beginning, as far back as I could go and order every single last shred of paper/imaging that is part of my medical records from every single MD I've seen; don't let them waffle about it--demand it. These are YOUR records. Then I'd look at them, very carefully. Then, I'd take them to an MS specialist and have him/her do the same, in a "second opinion" kind of way. It would be very useful for you also to have your timeline of symptoms/events.

spinal tap
As part of my consultation with a new specialist, I would request the following:
-spinal tap
-Evoked potentials testing
-MS protocol MRI of brain, C spine, and T spine (you said your MRI was brain only; and you need a C and a T spine)
-A full neurological exam, to include reflexes, vibrational sensation, pin***** testing, Romberg's, gait and balance testing, brush testing, positional testing, and eye testing

The big clue was that you said you are worse in the summer. Some MS patients have a hard time in the heat. In fact, back in the day before MRI's they used the hot bath tub test. If symptoms were worse then they were DX MS. MS and Lymes are both a clinical DX. There are no tests that are 100 percent as it is in most autoimmune disease.

Did you have a positive Western Blot test? What bands? You could have Lymes and MS. My Dr believes lymes may cause MS.

Last edited by cmspain; 04-20-2008 at 08:50 PM.

 
Old 04-20-2008, 10:32 PM   #6
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Re: Question about Lyme, candida and "herx"

How bad is your muscle twitching?? I have been having that on and off for a year. The neurologist will finally see me in a couple of weeks. I am so scared of what they might find. I don't even know what kind of tests they will run. I know I am under ALOT of stress. I lay awake at night worrying about money, my house payments.. bad situations with the family and it make the twitches worse. Is it the stress making me twitch? Or the twitches making me stress more? It is a vicious cycle. And then what if it is some disease? Then I can add that to my stack of worries. It drives me crazy. I have some of your symptoms too but I am way older than you so I think some of mine are perimenopausal. Heart palpatations come with that as well as a load of other pain in the toosh things to deal with. Including increased anxiety. Hang in there! Let us know what you find out!

 
Old 04-21-2008, 04:42 PM   #7
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Re: Question about Lyme, candida and "herx"

Quote:
Originally Posted by TEdwards83 View Post
How bad is your muscle twitching?? I have been having that on and off for a year. The neurologist will finally see me in a couple of weeks. I am so scared of what they might find. I don't even know what kind of tests they will run. I know I am under ALOT of stress. I lay awake at night worrying about money, my house payments.. bad situations with the family and it make the twitches worse. Is it the stress making me twitch? Or the twitches making me stress more? It is a vicious cycle. And then what if it is some disease? Then I can add that to my stack of worries. It drives me crazy. I have some of your symptoms too but I am way older than you so I think some of mine are perimenopausal. Heart palpatations come with that as well as a load of other pain in the toosh things to deal with. Including increased anxiety. Hang in there! Let us know what you find out!
For me the muscle twitches come and go. When they're there they move rapidly from place to place on my body -- not a big twitch either, just a little flicker under the skin or a little patch of a larger muscle that just keeps on firing super fast. Mine aren't caused by anxiety (I was an MIT student for 3 years before any of these symptoms came!) but if they're already happening they get worse when I'm scared. It just kind of drives me crazy when I wake myself up at night with some muscles I didn't even know I had "talking" to one another.

 
Old 05-31-2008, 12:36 PM   #8
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Re: Question about Lyme, candida and "herx"

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Originally Posted by Aimiloo View Post
There is a doctor in MA named Dr. Sam Donta. Some people on this board see him and I believe he takes insurance like a lot of people don't.
This is who I see. I feel very happy to be going to an LLMD. Going for a second visit next week. The first appointment I was diagnosed clinically. I only had a IGG 41 band show up on a Quest Western Blot. 3 negative ELISAS. As of now I have been on Tetracycline for 3 months. I hope to be able to pay for an Igenex test at some point.

Just about 3 years of not feeling well so far.

I don't know if you are still looking to get set up with a LLMD. . . If you need a phone number or the steps that you would need to get an appointment with Dr. D. , let me know.

Last edited by moderator2; 05-31-2008 at 01:39 PM. Reason: please read the Posting Policy and the FAQs

 
Old 06-24-2008, 01:02 PM   #9
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Re: Question about Lyme, candida and "herx"

Hi Pantaleon,

I think I can help you on the candida part. I take acidophilus (50 billion) from health food store and it is all natural, and just replaces all the good bacteria the abx is killing. It has to be kept in the fridge.

To kill yeast, there is a product called Theralac, one pill a day that people swear by. I actually take 3 oregano tablets a day as an alternative to Theralac, since I didnt know about Theralac till after i bought the oregano tabs. (There is also Threelac a powder other people use also)

When you brush your teeth, brush your tounge and upper roof of mouth. Believe or not yeast starts here. Use an oral mouthwash, like listerine or scope which is antiseptic. Gargle for at least 30 seconds.

My healthfood guy said you would have to eat gallons and gallons of yogurt to do the same thing as the oregano therapy.

Hope this helps and you are on your way to feeling better!

 
Old 06-24-2008, 04:37 PM   #10
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Re: Question about Lyme, candida and "herx"

Pantaleon-

I think Gemofnj has a good point about the oregano gell caps. Oregano might come in another form, I dunno. I think you probably want the capsules with the oil in them. You might also want to try getting some Kefir from your local healthfood store. Lifeway makes a no sugar added one with about 10 different probiotic strains in it. Kefir is WAY more potent that just yogurt. Some garlic capsulses should help too.

I'd reccommend at least two, 25 or 50 billion probiotic capsules daily. I often think the best time to take these probiotic capsules is right before bed and about 2-4 hours after your evening antibiotic dose or whatever. That way these things have a chance to help out before you wipe some of them out in the morning with your next antibiotic dose.

Brushing your tongue is a good thing too. Opening up one of those probiotic capsuls and just pouring it onto your tongue and kind of swishing it around with some water may help too.

I find a product called Candidase really helpful. You might want to try taking 1-2 of those at night before bed. All it is are enzymes but they "eat" away at the yeast and help to make the dieoff better as well. I guy that knows his stuff at a local healthfood store, swears by it. He says it helps to get rid of anything that shouldn't be there, and works well against Candida.

Last edited by luckeeluke; 06-24-2008 at 05:48 PM.

 
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