| Re: Burning Out
I can't give you much advise on HOW to get some additional hands, but I can tell you how important it is. Often times, a caregiver who has her/his own condition will have their condition exasperbate if they do not pay attention to their own needs first. Sleeping when you need rest, taking an emotional break when needed. My good friend moved in with me to help me with my dibilitating fibro. In helping me, she now has developed the signs herself of incomplete fibro. She had the signs before, but they have gotten steadily worse. In my own situation, they feel because of the stress that I worked so hard while I was originally sick, 18 hour days, 7 days a week, no weekends, no holidays, no vacations, no sick days, that I made my condition as severe as it is, and I still yet may develop MS or Lupus.
It is so very important for you to take care of yourself dear. It is nice that your brother helps, but do be sure he understands that you have your own medical condition. If you do not take care of yourself first, you will be of no help to either of them, and you could wind up in a flare, or worse. You both need to attend your emotional, physical, psychological needs. I would suggest besides this group, joining a real life group if at all possible in your area. Or you may want to consider counsling too. A lot goes on psycologically that can harm us physically.
Good luck....
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