Re: How do you live with the fear and the pain?
Hi Tracie, maybe it is something that will improve.... I say that because when my hubby first came home from rehab, he would wake up every single night between 1-4 in excrutiating back pain. I would get him up and he would be up 2-4 hours before he could go back to bed. That whole time he would be in horrific pain. That went on for months, and finally began to be less time that he needed to get up, then not at all. But, being it is in his head, I know that is more worrisome, because they are stroke survivors.
I'm pretty much in the same boat as you are as far as the massive stroke and what my husband lost. I know in the beginning, he was in such rough shape that I watched him like a hawk. This is very taxing. I did learn that when he took a nap, I took one. This helped a lot, because you are not necessarily going to get sleep when you were counting on it.
My husband did not a stroke like many (1 clot) - he had a mess hit his brain all over. At first they thought afib, but nothing showed on the heart monitor he wore for a month. The cardiologist said the only other thing that could cause that much debri hitting the brain (with no obvious injury) was a plaque rupture, which works pretty much like the artery dissection - same end result of what happens after that tear in the artery wall.
Seniors or DISABLED people can get meals on wheels from senior citizens organizations - I do too, because I am sole caregiver for him. I mention this because it takes so much effort to struggle thru all we have to do, that this is one meal I could count on that I didn't have to shop for, nor clean up after, nor pay for and I just don't know if I could make it without this help.