Carpal Tunnel and RSD - Carpal Tunnel Syndrome Message Board

NikonKid · 01-28-2007, 03:04 PM

After what I have been thorugh in the past two years I felt the need to share my experience. I was told I had bilateral carpal tunnel January 2005, was told I needed the surgery then but due to work concerns opted to put it off for a year and a half. In the meantime I splinted and had cortisone injections at the ortho office. The injections were painful going in and had to always take a couple of days off from work after getting them. My hands would be sensitive to touch and feel like the bones were broken. Doctor told me it was "normal" to have pain after injections.
Long story short had carpal tunnel release in July 2006, I've been on disability since. I have now been diagnosed with RSD and the only option left besides medications is the spinal cord stimulator. Not sure which came first carpal tunnel or RSD but surgery is at the top of the cause list and will aggravate RSD if you already have it.
You can find alot of information on RSD and it's connection to carpal tunnel by putting it in a search engine of your choice. The good thing is if it's caught early there is a good chance of putting it into remission.
I would hate to see anyone go through this....if your pain is greater than expected or having trouble recouping after surgery please look into this....I had never heard of RSD until my Physical Therapist told me about it.
Hoping for pain free days for all

Jeanne

Johands333 · 01-31-2007, 06:46 PM

Jeanne,
That's what I'm worried about now. I had cts release on both hands in July and October 2005. Then I helped my husband remodel a bathroom. I shouldn't have tried to help move a bathtub, shower doors, etc. They were too heavy. I did this in April 2006, less than a year after my surgeries. Now I have pain and shooting feelings in my fingers and hands. I think my nerves are sending signals into places they never used to. I can't drive more than about 3 miles and I am now wondering if I should have more surgery. Of course one thing I have to do is go see a new doctor. We are no longer with the same insurance as we had been. But I'm almost 50 and I could live another 40 years and with my hands this way I can't function. I worry if I have to drive any length of time.
--Jo

NikonKid · 01-31-2007, 08:39 PM

Jo
Have you done any research on RSD? The internet was the first place I finally found some answers. I also was in the middle of an insurance change which actually ended up being a blessing. New doctors with new ideas, my ortho kept telling me I just needed more time to heal from the surgery but I know my body and knew it wasn't right.
I now have a neurologist and pain mangement doctor, they both confirmed RSD the first time I saw them and started treating me aggressively. I had my first nerve blocks within a week. Unfortunately my RSD is Sympathetically Independent so the blocks didn't work. Now on meds to help with pain, I'm not ready to get the spinal cord stimulator. I have read to many mixed reviews with it's treatment as far as RSD is concerned.
Before you consider surgery make sure RSD is not what you are dealing with.....any type of surgery can cause the RSD to spread to that area of your body. Ice is a big no no for treating RSD too. So stay with warm therapy until you know for sure what you're dealing with
I've kind of rambled on here....I hope you can get some answers soon and find some pain free days

Jeanne

HURTEN · 02-03-2007, 02:41 PM

What Is Rsd? I Too Am Having A Problem With Pain But I Am Afraid Ofany More Surgery Or More Meds I Am Also Out On Disability Every Time I Go Back To Work I Suffer With Pain And Have To Go Out On Leave Again. I Go To Ortho Once A Month And Pain Mngt Once A Month On Meds I Also Had 24 Sessions Of P/t Which Gave Me Morepain And I Get A Bad Reaction From The Meds.

NikonKid · 02-03-2007, 08:52 PM

Hurten
I found out I had RSD when I was going to physical therapy after my surgeries...I had a lot of pain and then started to sweat in my right palm. I mentioned the sweating to my PT and she said sounds like you have RSD. I immediately went home and did a google search on it. As soon as I read the description it answered everything I was going through.
Basically your sympathetic nerve system goes haywire after an injury or surgery (carpal tunnel surgery being on the top of many lists)We can't post websites here but if you just type RSD into a search engine you'll come up with a lot of information. There is also a Healthboard for RSD which I find really helpful.
When I brought the information to my ortho he agreed...kind of ridiculous that I had to figure out what was wrong with me....after going to neurologist and pain management doctors they all agree on diagnosis. Early diagnosis and treatment is the best defense against it at this point. That's why I shared my story on this board. I hope you find the answers you're looking for....one thing I know for sure....I know my body, I know when something's not right....keep searching and asking questions until you find what you need.
Jeanne