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Celiac Disease Message Board
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Old 12-24-2004, 02:57 AM   #1
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Celiac Disease - VERY IMPORTANT


Just wanted to put this topic out there for the many people who have no reason to have osteoporosis... like premenopausal women, children and men. Celiac Disease is now found in 1 in 133 people (much more prevalent than once thought) and is very often extremely difficult to diagnose!

Celiac Disease is an intollerance - or allergic reaction to the protein in many grains, specifically: wheat, rye, barely and possibly oats. What happens is one's body ends up attacking the proteins of these grains and ends up attacking it's own intestines. After the intestines are attacked, they no longer function properly and do not absorb nutrients properly. Some people have "typical celiac" symptoms such as symptoms like in Irritable Bowel Syndrome or other stomach related issues. Some do not! It often depends on what nutrients the intestines are not properly absorbing too... as in an osteoporatic person, they might not be absorbing Calcium, D, etc.

I am a 46 premenopausal woman who has severe osteoporosis in the hips (-3.1) and osteopenia in my spine (as well as scoiosis). I have never taken drugs, been anorexic, or had any of the other typical reasons to have osteoporosis.

I'd gone to 1 endocrinologist who did a blood work up and didn't see any problem with my hypoparathyroid (another possible culprit)! She also didn't feel my levels in the basic Celiac screening showed I had it... but she advised me to see someone at Columbian University Hospital in NYC (she said they are much more knowledgable in these things)... which I did. This doctor in NYC ordered further tests, and took a thorough history of me... she feels I do have Celiac and took more blood for a much more precise screening of Celiac (Prometheus Lab's Celiac Serology). See, this is often the problem... many doctors don't know much about Celiac, and don't often look for it - especially in patients who don't exhibit classic symptoms. And for those who do screen for it, the common blood tests are often false negatives.

I'm still waiting on my newer blood results, but I feel that even if I don't have CD, many other osteoporatic women, men and children may and should absolutely be screened (and rescreened, if necessary) for this! Not only can it cause osteoporosis, remember, it creates malabsorption which can lead to a great many other problems... because malabsorption means malnourished!

Please look into this if you do not have any real hormonal reasons to have osteoporosis!!

 
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Old 12-24-2004, 01:30 PM   #2
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Re: Celiac Disease - VERY IMPORTANT

I found your posting very interesting. I have had IBS for 30 years and so did my Mom, she had severe osteoporosis and I am only 48 but my spine is -3.2 already. I am currently seeing a specialist, awaiting my bloodwork results after the new year but she also said it is a common for some people to have digestive problems like IBS, CD, etc., so absorption could be the culprit! Maybe that can shed some light on future treatments!! Good luck, let me know how your bloodwork turns out.

 
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