Celiac Disease? How to introduce new foods . . . WHAT can I eat? - Celiac Disease Message Board

numbcy · 07-13-2007, 09:47 AM

Looking for anyone who knows about Celiac/gluten free diets. I have no one to turn to. My doctors don't even know much/anything about it. It seems to be such an "unknown" disease.

I've just recently started the 100% gluten free diet about 10 days ago.

I am having difficulties with my new diet. I've started my gluten free diet, but I'm still getting attacks. Everything I've eaten has been 100% gluten free; I've even called each manufacturing company just to make sure every time I eat something. I've recently had an attack and I don't know where it came from.

Should I also stay away from soy, lactose, alcohol, and additives, even if they are gluten free? Are there certain gluten free foods that will still irritate my digestive system?

Maybe you could answer a question for me . . . I absolutely did NOT cheat on my gluten free diet, but I still got VERY, very ill on the 5th day. I do confess I did have some Vodka on the 3rd/4th day, but I thought that was gluten free; I even called the manufaturing company on the back of the bottle. Does my body have to heal before I can introduce certain, more abrasive "gulten free foods"? I thought I was just sensitive to the gluten in things, but I thought maybe my damamged intestines couldn't handle certain foods, even though the food really is still gluten free? I can't figure out why I had an "attack".

And my "attacks" keep me completely imobilized and bed ridden for days/weeks/months at a time. I will do ANYTHING to get back to my life again.

Donna K · 07-13-2007, 02:51 PM

Could you please tell me what symptoms you experience when you have an attack? My doctor has tested me for food sensitivities and oats, wheat, and barley were high. She suggested I follow a "gluten-free diet for a few weeks to see if makes my symptoms better. Thanks

numbcy · 07-13-2007, 02:58 PM

These are my symtoms . . . and have been my CONSTANT symptoms for the last 7 months . . . life is more than rough . . .

HEAD SYMPTOMS ARE THE WORST:

Dizziness
Fullness
Pressure
Throbbing
Feeling as if my head will colapse
Feeling as if my head will explode
Unexplainable, severely debilitating vertigo
Feeling as if my head is full of poison
Unable to hold my head up without support
Difficult to move my head
Difficult to move my eyes

Eye Symptoms:

Twitching
Unable to keep eyes closed
Different/pressured dizziness when move eyes up/down/side to side
See spots/green outlines always
Unable to focus
Cannot see straight

Other Symptoms:

Involentary muscle spasms (as if there is an earthquake)
Tingling in hands
Burning of every muscle in my body
Burning arms (on the inside, not the outside)
Burning face (on the inside, not the outside)
Depression/suicidal thoughts/loss of hope of EVER getting well

amiee79 · 07-13-2007, 06:28 PM

I was diagnosed with Celiac Disease last year and I read all your symptoms. Did your doctor do blood tests or a biopsy of your small intestine to confirm the diagnosis? I am wondering because all those symptoms you mention are not atypical of Celiac Disease. Most symptoms are GI in nature. Some people have gas, cramps, bloating, diarreha and/or constipation. I know that Celiacs can have different types of symptoms. Remember if it is Celiac Disease that you have then it can take a long time (months to even a year) for your small intestine to heal enough.

amiee79 · 07-13-2007, 06:33 PM

Just reading your symptoms again and wondering if you are taking anti-depressants. I ask because I was on and off anti-depressants because I was depressed when we could not find what was wrong with me. I was having most of the symptoms eye and head (dizziness, eye twitching, etc.) and they are all symptoms of depression and anti-depressants. Most doctors do not know anything about this disease because there is no research into it from the drug companies.....because Celiac is not sured with a drug. It's sad but true. Good luck.