My daughter's story -- she has celiac
I just decided to reconnect with these message boards. My daughter had a constant 24/7 headache for 18 months. She never quit college, graduated top of her class. she is determined to live her life without burdening others. My point in writing...her cause is treatable!
My daughter has CELIAC DISEASE. It is an autoimmune disease where your body attacks the small intestine whenever you eat ANYTHING containing wheat barley or rye. Even in the smallest amounts.
She is recovering slowly, average is 18 - 24 months. Her headache only returns to full strength when she is exposed to gluten.
Many of you may be suffering from the same thing. The only treatment is to avoid eating, washing, cooking, exposing yourself to anything containing gluten! We spent 25k+ looking for a cause and cure. I was convinced it was lyme disease. Mayo Clinic diagnosed her. Our family doctor, whom we have a great relationship with, has 2 other celiac patients and did not recognize the problem. The test to tell your doctor to use is a TTG, Trans-Titer-Glutenase. Cost, less than $100.00. If positive, then it is followed by an endoscopy to confirm it.
If your headache was not caused by an accident, PLEASE refer to Celiac sites and check the symptoms against yours. You may be able to escape the headache pain after all.
Hope this helps someone out there.
Last edited by mod-anon; 03-26-2010 at 08:49 PM.
Reason: starting a new thread with this post.