Re: Is Celiac dormant until triggered?
This is really tricky. All doctors and dietitians would recommend a gluten free diet for someone with Celiac Disease. My dietitian said 'even if you don't feel sick from eating gluten it's still doing damage'. If her biopsy showed damage, then damage is occurring. Some people have no symptoms and still have damage.
My uncle (who is a urologist and has Celiac Disease) said 'if you don't feel a lot better, you're not under weight and you have no deficiencies then you can make the call'. That was his advice to my Mum and I (we both have CD).
I have read that those with Celiac Disease who are not on a gluten free diet run the risk of other health problems, such as other autoimmune diseases, osteoporosis and bowel cancer. But like I said to my dietitian, I could get hit by a bus and die tomorrow! (touch wood) and she agreed, it's a personal call.
For me, I had low B12 and foliate, normal weight and had the odd stomach ache and bowel movement before going gluten free/being diagnosed. Because of my deficiencies, that was enough to keep me on a gluten free diet. I also feel like I have more energy and probably eat healthier too.
But if I was in your daughter's shoes, I don't know what I would do. It's tricky. I guess you need to weigh up the risk of eating gluten and possibly having these future health problems, or going on a gluten free diet when you're not seeing any benefits.
Maybe she needs to have another biopsy? If she's been eating gluten for the past year the biopsy will give you an accurate measure of damage.