It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Celiac Disease Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-01-2011, 06:26 PM   #1
Junior Member
(female)
 
Join Date: Jun 2011
Location: Denver, Colorado United States
Posts: 10
AmyFed HB User
Red face Possible Celiac or something else undiagnosed?

Hey everyone! I'm new to this specific board, but have been posting on the digestive disorder board. Anyway, here's my story.

I'm a 24 yr old female, relatively healthy (have a low platelet count and eczema but nothing serious). I've starting having upper abdominal pain in the beginning of April, that felt like a constant pressure in the center along with nausea. Sometimes, it will get bad after eating fatty/greasy meals (or I'm guessing just large meals). I can eat cereal, cookies WITH milk, and simple sandwiches (turkey and some mayo) without having pain if I eat small bowls of it. When it gets bad, the pain will build up and sometimes feel pain all over. The pain has lasted at most 4-5 hours before dying down. Area is very tender after these episodes, and makes me feel like puking my guts up the entire time. I've puked once, but other than that I don't have constipation or diarrhea.


Went to the doctor in the beginning of April, and was diagnosed with gastritis, and was given Prilosec OTC. I was told to take it for a week, and return if it wasn't helping. It didn't do anything for the pain or nausea, so I went back in a week. That time I was given Dexilant (1 per day) and Zantac (2x a day) to see if that would do the trick. Dr also ordered a blood test to check liver and pancreas enzymes which came back normal. Another week later, still having the same pain and nausea so was ordered an abdominal ultrasound. Came back normal.

Came back to see another doctor, who then ordered a stool test for H Pylori. That came back normal as well, so I was referred to a gastroenterologist. I saw the Gastro specialist on May 12, and he said it sounded like a poorly functioning gall bladder so he ordered a HIDA scan. Did the scan on the 26th, and that came back normal as well. I did an upper endoscopy on the 23rd of June, and GI doctor said everything looked normal but took biopsies for H Pylori and Celiac.


He prescribed me Librax the day of the scope, and I've taken it without noticing an improvement.

I took my first pill of Librax on the night of the 26th, and decided to have some meatloaf, potatoes, and veggies for dinner. I guess that was way too much for my body to handle, because I ended up in the Emergency room for about 3 hours later that night. They gave me a GI cocktail which didn't do anything, so then they gave me pain meds via IV for an hour and sent me home with some Vicodin. Blood tests came back fine for WBC and liver/pancreatic enzymes.

I've lost 6-8 lbs since this started, doesn't seem like a lot but it's usually hard for me to lose. I barely have an appetite, and when I do eat, I usually only eat a little bit because I can't finish even a whole plate of food.

I called this afternoon for my biopsy results and the nurse said the H Pylori was fine, but something about elevated leukocytes (I think that's what she said) in the small intestines, but it's fine. But she did say she was going to talk to the dr and see if he wants to order blood tests for Celiac disease.

Now it's the 4th of July weekend, and I won't hear back until at least Tuesday, so I'm worried sick over this. Please does anyone have any advice or ideas?

 
Sponsors Lightbulb
   
Old 07-07-2011, 06:13 PM   #2
Newbie
(female)
 
Join Date: Jul 2011
Location: Tacoma,Wa,USA
Posts: 1
klcj HB User
Smile Re: Possible Celiac or something else undiagnosed?

Quote:
Originally Posted by AmyFed View Post
Hey everyone! I'm new to this specific board, but have been posting on the digestive disorder board. Anyway, here's my story.

I'm a 24 yr old female, relatively healthy (have a low platelet count and eczema but nothing serious). I've starting having upper abdominal pain in the beginning of April, that felt like a constant pressure in the center along with nausea. Sometimes, it will get bad after eating fatty/greasy meals (or I'm guessing just large meals). I can eat cereal, cookies WITH milk, and simple sandwiches (turkey and some mayo) without having pain if I eat small bowls of it. When it gets bad, the pain will build up and sometimes feel pain all over. The pain has lasted at most 4-5 hours before dying down. Area is very tender after these episodes, and makes me feel like puking my guts up the entire time. I've puked once, but other than that I don't have constipation or diarrhea.


Went to the doctor in the beginning of April, and was diagnosed with gastritis, and was given Prilosec OTC. I was told to take it for a week, and return if it wasn't helping. It didn't do anything for the pain or nausea, so I went back in a week. That time I was given Dexilant (1 per day) and Zantac (2x a day) to see if that would do the trick. Dr also ordered a blood test to check liver and pancreas enzymes which came back normal. Another week later, still having the same pain and nausea so was ordered an abdominal ultrasound. Came back normal.

Came back to see another doctor, who then ordered a stool test for H Pylori. That came back normal as well, so I was referred to a gastroenterologist. I saw the Gastro specialist on May 12, and he said it sounded like a poorly functioning gall bladder so he ordered a HIDA scan. Did the scan on the 26th, and that came back normal as well. I did an upper endoscopy on the 23rd of June, and GI doctor said everything looked normal but took biopsies for H Pylori and Celiac.


He prescribed me Librax the day of the scope, and I've taken it without noticing an improvement.

I took my first pill of Librax on the night of the 26th, and decided to have some meatloaf, potatoes, and veggies for dinner. I guess that was way too much for my body to handle, because I ended up in the Emergency room for about 3 hours later that night. They gave me a GI cocktail which didn't do anything, so then they gave me pain meds via IV for an hour and sent me home with some Vicodin. Blood tests came back fine for WBC and liver/pancreatic enzymes.

I've lost 6-8 lbs since this started, doesn't seem like a lot but it's usually hard for me to lose. I barely have an appetite, and when I do eat, I usually only eat a little bit because I can't finish even a whole plate of food.

I called this afternoon for my biopsy results and the nurse said the H Pylori was fine, but something about elevated leukocytes (I think that's what she said) in the small intestines, but it's fine. But she did say she was going to talk to the dr and see if he wants to order blood tests for Celiac disease.

Now it's the 4th of July weekend, and I won't hear back until at least Tuesday, so I'm worried sick over this. Please does anyone have any advice or ideas?
Hi, while you should have the results by now it sounds to me like Celiac disease. I had alot of the same problems only it took years to get a scope done. Don't worry, with a bit of work esp. at first you will get the hang of the gluten free diet. Google --GIG (Gluten interolance group), Gluten-free mall-- you can buy just about anything here, and celiac.com to start informing yourself. Try not to do what I did and buy everything gluten free (in huge print) just because it says gluten free it is often more expensive, with just a little bit of lable reading you will find that regular foods are really marked gluten free just not on the front label.
Good Luck

Last edited by klcj; 07-07-2011 at 06:16 PM. Reason: spelling errors

 
The Following User Says Thank You to klcj For This Useful Post:
3Browneyedgirl (09-21-2012)
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Celiac Disease? Soo Tired Celiac Disease 7 02-22-2011 12:46 PM
Celiac questions. kerry4 Celiac Disease 3 08-09-2009 08:37 AM
Celiac's or...? sv27 Celiac Disease 1 07-30-2009 04:25 PM
H. Pylori? Celiac Disease? Something else? dreamingdenali Celiac Disease 5 02-18-2009 12:01 PM
Does anyone have epilepsy and symptoms of Celiac Disease? VA_girl Celiac Disease 0 04-08-2008 06:24 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



jwmom7172 (2), vegator (2), SOE (2), DeniseA (2), luca689 (1), kristiontario (1), paperbgprinces (1), klcj (1), Junip1977 (1), KSMom2012 (1)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 11:19 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!