I see that this was posted a couple months ago and no one ever responded. Hopefully you'll get to read this. I did take the time to read your entire story and thank you for sharing it because I think it might help me--made me reconsider the possibility of Celiac Disease as the cause of my probs anyway. I've suspected CD for a while in myself and many of my symptoms (some of which I've had for my entire life) are very similar to yours.
You say you're waiting on test results and all, but have you considered trying an entirely gluten free diet for at least 3 months or more? (I've read it can take up to 6 months maybe more before people with Celiac really start to recover). This is what I'm considering doing because I don't have health insurance right now as it is, and so I can't see a doctor.
The one thing that stuck out in your post was the vitamins you've tried and you say you did not feel any better from them after a week or so and so you gave up. I've also read that if you are vitamin deficient, whether it's Vitamin D or B12 or Magnesium or Iron, or whatever..it will take months before your levels get back up and you see or feel an improvement, so maybe you should consider starting some of the vitamins again and just keep taking them each day for at least a few months.
Anyways, here is a list (rather long) of my symptoms beginning with the first ones I ever had which began during early childhood (6 or 7 years old). Many of them have actually gone away, such as the hives, or have changed and the ones towards the bottom of the list are the newest/most recent symptoms:
-severe stomach cramps and bloating from gas buildup diarrhea, sharp stabbing pains, burning pains in stomach. These symptoms are not near as severe as they were when I was much younger, but I remember being doubled over and crying in the hallways at school from the severe pain.
-stabbing pain in throat, sensation of swallowing a knife.
-Frequent outbreaks of hives. I'd usually get these in the evening or at night time. Often on my back or stomach, neck or hands. I was tested for allergies when they first started appearing. Tests were negative. I have not gotten hives in a few years. This one seems to have completely gone away.
-Severe anxiety, panic attacks (on a daily basis beginning at age 8) and depression. Also some hallucinations and other symptoms of psychosis.
-frequent headaches, occasional migraines, hot-flashes, lightheaded, dizzy (vertigo).
-Electrical shock type pains throughout head and other areas of body. These generally last a few seconds and go away but it is a paralyzing feeling of pain when they come. These have gotten worse over the years.
-TMJ symptoms/issues. Jaw pain, popping, clicking, feels like my jaw dislocates at times, clenching and grinding teeth at night. This seems to cause lots of headaches and pain during the day.
-Sinus issues. These seemed to get much worse after recovering from a severe sinus infection about 3 years ago. I now have constant thick mucus drainage from the right side of my throat each day, swelling in right nostril (cannot breathe normally out of that nostril. Constant sinus pressure, pain in face and head. Popping in ears. My left ear literally pops a couple times every single minute of every single day. It feels like there is fluid inside.
Reoccurring UTI/bladder infections, trouble urinating and emptying my bladder (even when I don't have an infection). Frequent need to urinate. Very strange smelling urine for a few years. Seems to have improved.
-tingling and burning sensations in legs. Especially when exercising.
-knotting up muscles, stiff joints. Back pain. Have been treated by a chiropractor/sports med doctor. She was actually the first to suggest gluten intolerance/celiac based on this and my numerous other symptoms.
Disturbed sleep-difficulty falling to sleep, am a very light sleeper and didn't use to be. I now wake up at the drop of a pin, very vivid, long lasting dreams. Not always bad but when they are they are completely hell-like. And this is strange and fairly new--Often when first drifting off to sleep I become very sensitive to the slightest noise or movement. Any little noise will jolt me back awake and give me a feeling of heart attack or severe panic and a sudden jolting electric shock throughout my entire body. Will sometimes hear voices (audio hallucinations) at the same time.
-Rise in body temp when resting or sleeping. Sometimes will wake up with a severe, pounding headache and feel very hot all over. For some reason this happens the most when I take a nap and not as much when I go to bed for the night. Because of this, I rarely take naps anymore because they only make me feel ill. My bf also comments on how hot I get at night.
-Most recent and most irritating--sudden vision disturbance. Severe sensitivity to light, trouble focusing, trouble following moving objects, feels as though I'm becoming cross-eyed or like my peripheral vision is overly aware. I am constantly seeing my nose in my field of vision. I can see the tops of my cheeks when I look down just a little and see my eyebrows when I look up slightly. This one is really affecting my ability to function and it's making it difficult in social situations as I cannot see people properly.
Like I say, I don't have health insurance and the last time I saw a doctor was two years ago. I went to the ER late one night because I felt as though I was dying. The only thing which came back abnormal was my thyroid level. The doctor came and told me I had hypothyroidism and to take a couple weeks off from work. That was about it and I was sent home. About six weeks later, I went in for a full physical. This time everything was normal, even my thyroid level.
My family members and bf began suggesting it was all in my head, that I was a hypochondriac or that it was all stress related. I decided to give up on doctors and give up on sharing any of this sort of information with anyone. I didn't like people suggesting it was all in my head because I know it isn't, but still I don't talk to anyone about it anymore. Just keep it to myself. I even try to believe/convince myself that it IS all in my head and tell myself to get over it.
Since I would prefer not to see a doctor even if I did have health insurance, I am going to try a completely gluten free diet for at least 4 months and see how I feel after that. If I feel even slightly better, I'll push it to 6 months.
Hope you've found some answers since having posted this. Hope you're doing well and feeling better