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Celiac Disease Message Board
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Old 02-01-2013, 11:00 AM   #1
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Join Date: Oct 2005
Location: New England
Posts: 744
scoot HB User
Diagnosis Negative, but Symptoms Positive

Hi all

I've had the IBS label for years, and had no relief until I stopped eating grains, so I figured I'd get tested for celiac and gluten sensitivity. Both came back negative. I really didn't expect to be positive for celiac, but for something to show up as at least sensitivity. The symptoms are quite clear when I go on grains and off grains. My body cannot handle grains. So why are the blood tests normal, I wonder. Would anyone here know? Perhaps it does not always show up in the bloodwork?

BTW, I was off gluten for months (except for one cheat the week before bloodwork). The doc was aware of this. Can that have a bearing? Do you have to be eating gluten in order to get an accurate result on blood tests?

Thanks
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Hyperactive thyroid 1978----IBS 1983 -----Hashimoto's 2005

 
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Old 02-09-2013, 06:56 PM   #2
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Join Date: Aug 2011
Location: Lutherville, Maryland
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toolongonPPIs HB User
Re: Diagnosis Negative, but Symptoms Positive

I am pretty sure that, because you had been gluten-free for many weeks prior to the blood draw, the test result was most likely a false negative.

 
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