16 months old with CP
For anyone that would like to know some info or anyone that has some info....
Sept 30th 2003 my son was diagnosed with CP. He was about 14 months old. Now that I have some of the missing puzzle peices because of the diagnosis I can understand more about the first year of his life. From the first days in the hospital... I was having trouble feeding him. He was bottle fed and he would suck and suck but the bottle would still be full. After a couple days we figured out a way to insert the bottle and he would eat. Now researching CP I found that trouble sucking is a first sign of CP. He was such a good baby. What I thought was good, however now I know that he just didn't know how to start to get around. He was about 2 months late holding up his head, but people and docs said that kids do things a different times. He didn't sit up until 10 months old and was very unsteady, but again people and docs either thought that he just wasn't ready or that we just never made him. Also his thumbs were always tucked into his fists. I kept wondering when I would be able to use the finds thumbs sticker on his baby calander. I would ask his ped doc at all the wellness checks and he would say just give him some more months he is progressing. At 11 months I took him back to the doc and said I am concerned about his development. The doc had me call my local child development center. We then started to do OT and feeding therapy. At 11 months old he was still on #2 baby food and couldn't crawl. About 1 month later I decieded to get a second opinion. This ped doc offered me and MRI for him. That was giving about another month later. The next day we were taken into the office and informed that he had CP. BAM........I knew that it was possible but of course every parent is hoping for the possibility that he was just had developmental delay. So on one hand we now had a medical reason, on the other hand we had a medical condition. We then began PT therapy. I was angry that I wasn't able to know earlier so we could have had even earlier intervention then we did. At about 15 months he was crawling well, but knowing that he has CP I can spot differences in his crawling. Not that I'm looking for odd things, just sharing signs I can see. 2 weeks ago he began to ride on a scooter that we gave him on his first birthday. What a great day, he moved his feet and then again and again. He does have trouble when his shoes are on but that will take practice because of the added weight. With feeding we are able to eat gram crackers with peanut butter (for protien, he can't quite do meat yet for some reason) yogurt, pasta, some breads and some cerals, certian fruits and vegies. I have tried a lot of foods. About his thumbs they are pretty much still tucked in. We have gloves that help. Nonetheless, we still are unable to get the pincer grasp for self hand feeding. I have never shopped for more foods that come in a stick in my life. The PT brought up botox injections for his thumbs. So I have been trying to research it, I don't know so if anyone could help! He is feeding himself with a loaded fork or spoon placed in his hand. Arms seem to be functioning, trunk weak I believe, legs seem to be a little weak, but that could also come from the ankles. Thank you for letting me ramble on, I just really want some conversation with people going through the same situation. I am interrested in all sorts of therapy, including alternatives if anyone has research to share. And new ideas for teaching my child. Again Thank you
Last edited by alinch; 11-19-2003 at 09:31 PM.