CP and chronic inflammation - Cerebral Palsy Message Board

mn9 · 07-05-2004, 06:31 PM

I am a 31 year old female with partial CP. I was diagnosed with CP at 14 months. I have recently been diagnosed with patellofemoral pain syndrome in my right knee which is the side that is affected with CP. I also have chronic inflammation in that knee.

Is there anyone else out there that has been diagnosed with the same thing that can help me out in what to expect?

lastramy · 07-05-2004, 07:03 PM

Mn9,

Hi! I am very interested in your knee pain as I have been getting quite a lot myself. I am 39 with spastic hemiplegia (L side).
What kind of pain are you having??
I have lots of chronic infammation in my lower back and I am on celebrex for that. It may be something to look into for your knee.
How did they come up with your knee diagnosis????

Lastramy

mn9 · 07-05-2004, 07:29 PM

Quote:

Originally Posted by lastramy

Mn9,

Hi! I am very interested in your knee pain as I have been getting quite a lot myself. I am 39 with spastic hemiplegia (L side).
What kind of pain are you having??
I have lots of chronic infammation in my lower back and I am on celebrex for that. It may be something to look into for your knee.
How did they come up with your knee diagnosis????

Lastramy

lastramy.

I have sharp shooting pain with popping and cracking. It feels like bone rubbing on bone from having no cartilage in the knee. The doctor says I have some arthritis build up because of there being no cartilage there. I went to the doctor end of April because the pain the knee was too much. He took some x-rays and that's when he discovered the arthritis and diagnosed me with patellofemoral pain syndrome. Because I went for 2 months before going in to see the doctor, I am now paying the price. They are currently trying to treat the inflammation with Neproxen and pain with Tylenol. I was also in PT to try to regain strength in that knee and foot. They are also running blood tests to see what the underlining cause is. The only test that comes back irregular is the inflammation test which is elevated. It is a mutual frustration, because no one has any answers yet. Good luck with yours and get it checked out ASAP. Let me know what they say about yours.

mn9

jillw · 09-09-2004, 12:51 PM

Lastramy & mn9,

I'm familiar w/ the pain & inflammation & have been told it's arthritis. Doctor said I have the knees of a 60 year old, I'm 35! Nine yrs ago I had surgeries which made it possible to wear footrests. Prior to that, my legs & feet got caught on everything. I'm sure that didn't help the situation. Anyway, I take Robaxin 150mg x 4 daily as needed. It works well for me & is not addictive. Let me know how it works or if you have tried it before.

lastramy · 09-09-2004, 04:32 PM

Hey guys!
Thanks for the input there. I have had iflammation problems in the knees, hip and back. My x-rays come back normal though. I had a spinal epidural for the back issues because I had lots of pain when trying to get in and out of a a chair. It was basically antiinflammatory meds put in right at the site of pain as apposed to going throught the whole system. It worked!
I take celebrex now. I thought it wasn't really doing much untill I stopped for a few days and WOW was there a difference.

If you have any problem with the low back or hip or gait issues, so says the docs at the spine clinic. Then you will absolutely end up with knee problems over time. The knees just take too much abuse where walking is concerned.

But hang in there both of you.

I was taking naproxen for inflammation but it didn't really work for me. If it works for you then great. If it doesn't and you want to try something different, ask for celebrex or vioxx. They are in the same drug class as naproxen but they are less harmful to the stomach lining over time.

Gotta go, keep in touch!
Lastramy