cp baby - high tone - Cerebral Palsy Message Board

nellyarron · 04-29-2001, 10:55 PM

My baby is 7 months old and has high tone CP. I went to the doctor last week and they said things are not looking good for him, his head is not growing, he has put on heaps of weight, but doesnt move only to feed. I am desperate to talk to other familys to see if any one else can give me ideas on what the furture holds for us or ideas on helping our beautiful baby.
NELLY

ruddfan · 04-30-2001, 12:30 PM

My daughter was diagnosed with CP at around 9 months of age. We were told by a couple of doctors that her head wasn't growing. We made them do measurements every time we went to the dr just to see if there was any change. Her head is growing just very slowly. She is very small for her age anyway so the head size isn't that big of a deal. She is 6 years old now and does very well, she gets physical and occupation therapy at her school once a week which really helps her. Does you baby get any kind of therapy?

cojac · 10-02-2006, 04:54 PM

Doctors know a lot about CP. They have made great progress in the past 20 years. What they don't know is you child. You are the person who is always there, taking care of them, seeing thier progress or lack of. You need to be the advocate for your child and stand up for what you believe. Fight for anwsers and do your research. My daughter was 9 weeks premature, she was diagnosed 7 months ago. I knew something wasn't right with her. I went from doctor to doctor until I found someone who would listen, someone who would do the test and examin her. I was right all along. I may not have know what was wrong, but I knew there was something wrong. She now gets therpy 3x a week, water therpy 2x a week and her high tone has improved greatly. Water therpy is a great method to start with. Once they are in the water and feel the freedom of movement they want more. She has gone from lying like a 2x4 to a lusy goosy!Try it.!
Good luck!

corina

Dina Sousa · 10-25-2006, 03:41 AM

HI CP BABY HIGH TONE

my little girl has High tone CP and it's diffcult as a first time mom to see your child like that , i have been taking my baby to fisio, and speech therapy, we have done 5 sessions of hypobaric treatements and i try everything that i can, i play music for her all the time classical really helps, i found that for 2 weeks i lacked playing music and their was little growth on the head as soon as i started playing music again their was growth. some doctors have no feelings i was tolled that she will never walk or talk she was only 1 month old, and they said their is nothing else i can do for her and to top it off the doctor said to me i must not cry it's not going to help. it's so diffucult not knowing what the future hold for us, my baby is also 7 months what does your baby do ? we can mabey exchange ideas and happings in our childrens lives
please keep in touch

Dina Sousa · 10-25-2006, 03:47 AM

what is water therapy