CURE FOR CP - Cerebral Palsy Message Board

Fanny Hendrickx · 09-17-2001, 02:11 PM

My son (21 monts old) has cp. We just returned from the UK where we are following a new therapy. It looks very promising and i talked with several parents from all over the world who told me about the amazing progress the children made. The Advance-team also treats children in Canada and later on in Belgium. We are very hopefull because one mom told me that her 3 year old daughter started to sit unsupported, something her neurologist said she would never do.

Fanny

[This message has been edited by moderator3 (edited 02-19-2002).]

Debbie 1 · 09-24-2001, 09:33 AM

dont listen to the doctors they dont know what children with CP will do cause they only know the dianosis. Doctors told my parents i wouldnt do alot, but God showed them differently. Doctors are good but then again so is God He knows everything that will happen with His "special" children

adinah · 11-29-2001, 05:47 PM

Hi. I agree with the last poster. Don't listen to doctors about what kids with CP can or can't do.

They said I wouldn't walk until I was 6 (I walked at 2). They said I would never run (wrong), ride a bike (wrong), or play sports (wrong).

They said I would have slurred speech. Not only do I speak clear and perfect English, but I also know Japanese, Spanish, and French and can speak those with near-perfect accents.

They said I wouldn't have bladder control. I do.

They said I would be retarded. Well, I am a senior at UC Berkeley, so I think that was wrong, too.

So-- don't listen to doctors. They are definitely not Gods. They also need some people skills most of the time.

Gudridur · 01-15-2002, 11:57 AM

Thank you Fanny Hendrikx
Reading your message and using your link to ANR just lighted a light in a long dark tunnel. Our son is seven now and we had just about accepted his condition as permanent. Clearly we haven't tried everything.
Thanks

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Gudridur

Fanny Hendrickx · 01-17-2002, 11:48 AM

Dear Gudridur,

I would like to tell you that we are very hopefull about the treatment in England. Our son is making progress. The most important change is the way he is breathing. At first only the abdomen was moving, now, after 6 months therapy his chest has developed and he starts to use his thorax. The spastic movements are reduced and he starts to lift up his head.
Every visit we can see the other children of our group improving too. We have faith in this therapy because for the first time we can notice the differences.
So, please, don't give up and don't pay to much attention to what some doctors tell you.
Good luck!!

Fanny

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