my little boy has mild spastic diplegia - Cerebral Palsy Message Board

connersmummy · 08-09-2005, 02:58 AM

hi

my little boy conner is now 14 months and has just been diagnosed with spastic diplegia.
does any one have any information on the illness and treatments of this.
thanks so much
claire

apddopey · 08-09-2005, 06:54 AM

Hi, I have a son named Connor too that has mixed spastic quadraplegia. I had him diagnosed at 6mo of age. At that point we started therapy and havn't stopped since. You can contact the state, they have a program (here it's called Infants and Toddlers) that provides free therapy at the home. I would also get other therapy through your insurance. Connor has ot 2x a week, pt 2x a week, and an education teacher 1x week. Is Conner's severe? Can he eat by mouth? Just curious since they are close in age. My Connor is 19mo, he is a twin and they were born at just 27 weeks. His twin has no issues, other than being a little devil,lol. Good luck to you and it is nice to meet you.

Jennifer

Steffers2318 · 08-09-2005, 08:10 AM

This is a pretty good site to understand CP but it has a LOT of info...I'm sure your doctors will answer any questions you have as well, or you could do a search for more websites...there are a lot of them!

http://gait.aidi.udel.edu/res695/homepage/pd_ortho/clinics/c_palsy/cpweb.htm

lauriejacknseth · 08-12-2005, 02:01 PM

Hi Claire,

Welcome to my club. My son Seth has CP too.. He is about 26 months now and was diagnosed at 18 months. He was not a preemie and was developing normally until he was barely sitting unassited at 9 monhts (has very low tone in trunk) that we started investigating matters.

The good news is that it is not an "illness" Our kids will struggle to overcome (as much as possible) and learn to work with their motor and other issues but the CP will not make them sick or get worse perse. CP is a one time insult/injury to the brain so we are lucky in that respect compared to a more progressive disorder like a dystrophy or a cancer, etc.

I agree with using early intervention right away if you aren't already. Get him assessed and start your therapies. It is the best line of attack. Do you live in the US? If you do, every state should have early intervention (called Babies can't wait in Georgia).

Let me know how Connor is doing. Can he sit up unassisted or walk? How about feeding and cognitioon?

Hope I can be of help, sounds like i am just ahead of you in the journey.
HTH
Laurie

JellyRJFan · 08-12-2005, 07:07 PM

Hi Connersmummy! Glad to have you on board with us

Good news- CP isn't an illness. It's a "non progressive" (which, in my opinion is SO misleading) condition. The brain injury is static, but the secondary effects are not. In my case I've already started the decline we all hear about, and I am 19 years old.