Hey Everyone - Update! - Cerebral Palsy Message Board

missbbpepper · 07-13-2006, 10:42 PM

Hey everyone,

I know its been FOREVER since Ive posted. Sorry!!!

Well heres an update on me.

Useing the wheelchair a lot these days. Still have severe back problems - Spondeloythesis (sp?) and the seizures, and now headaches and migranes more often. Went to the eye doctor the other day - and come to find out I have some things enlarged in both eyes - so will be getting more tests when I go to pick up my glasses. My bladder is still causeing problems -neurogenic bladder.

My service dog is doing great (Quincy).

I was finally put on Baclofen Oral. 20mg twice daily. The Dr. wants me up to 80mg daily. Also on Etodolac (sp?) 400mg twice a day. Among other meds for other issues.

Well thats about it for now

Amber and Quincy

Steffers2318 · 07-14-2006, 04:26 PM

Hello,

Good to hear you're doing well. Mind if I ask what kind of eye problems you have? I've been seeing specialists for enlarged optic nerves for about 8 years...they can't figure out why they're like that. My pressures have always been normal, but I started having eye pain about a year ago, so they put me on glaucoma drops and the pain has been better since.

But I wonder if that has something to do with CP?? Does anyone else have similar issues?

missbbpepper · 07-14-2006, 05:12 PM

Steffers -

Right now It is all new to me - I am not sure what eye issue I have - this has been my first appointment in over 2 years - I am sure that once we find out why and what is wrong I can get on treatment - you guys will be the first to know.

It is nice to know there is hope.

Amber and SD Quincy

jomeja · 07-27-2006, 07:55 PM

Amber,
Last you posted on another board, you were talking about possible scoliosis surgery? How is your curve doing deary?
Tracy

missbbpepper · 07-30-2006, 10:45 AM

Tracy,

Its not for Scoliosis - its for Spondelotheses - fractures in your spine that are degenerative. And to answer your question - I'm now only deciding when to have it done.

Thanks
Amber/Quincy