It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cerebral Palsy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-21-2007, 02:54 PM   #1
Newbie
(female)
 
Join Date: Aug 2007
Location: Australia
Posts: 1
roxannemur HB User
Question regarding 6 month old daughter

Hi there,
I have 6 month old b/g twins. My daughter is showing signs of cerebral palsy and I am not coping very well at all. She just lies under her play gym and once in awhile will reach up with one hand to play with her toys. Oddly, though she does switch which hand she uses but does not bring her hands together. If you hold a toy out to her it is like she doesn't know what to do with it. Her head and neck control is great and she does bear weight on her legs. I have noticed that when she is lying on her back her legs tend to be straight out and a bit stiff. I have an appointment with the neurologist in a few weeks.

Can you please tell me -- if she is showing signs this early am I in for a severe diagnosis? Has anyone had a child show signs at 6 months and turn out to be mild? It seems like everything I read says that the mild cases aren't diagnosed until 2 or 3 so am I right to assume she will have it badly?

Thanks so much for your advice.
Roxanne

 
Old 08-21-2007, 06:26 PM   #2
Senior Member
(female)
 
Join Date: Oct 2006
Location: Winston-Salem
Posts: 169
nwmom HB User
Re: Question regarding 6 month old daughter

Hi Roxanne,
I don't know. Every case is different, they say. Our son's legs seemed to be a little straighter than his brother's early on and his toes seemed to point down more than normal, but he had poor head control. We massaged his legs every day for a year before he was formerly diagnosed. I believe--and this is just my opinion--that massage can help keep their tone from contracting as severely if they do indeed have a moderate diagnosis. I think there is research on this.
Our state has an in-home program where premature babies are visited by a PT, OT and ST for an evaluation and they will come in the home and work with babies who have higher than normal tone and other issues. Does your area have anything like this? They'll do this until they're three years old. Noah was a mild case but I think they knew at his 11-month eval that he may have CP. They had a PT come in once a week to work with him and when we went in for his 18-month follow-up with the NICU Doctors at their follow-up clinic, they diagnosed him with a mild form of CP, due mainly to what the PT told us to tell them ("low to moderate tone in legs and excessive drooling). Hope this helps. Best not to worry about it (or try not to!) until they give you their own opinions. Once you know, you can do your own research on it to help you feel like you have some control in what to do to help your daughter on the physical and emotional levels as time goes on. That seemed to help us to cope with our new reality of having a child with special needs.
Best of luck to you, and keep us posted!
nwmom

 
Sponsors Lightbulb
   
Old 08-22-2007, 02:09 AM   #3
Senior Member
(female)
 
Join Date: Oct 2004
Posts: 240
Malwm01 HB User
Re: Question regarding 6 month old daughter

Hi Roxanne,

I’m not a parent or doctor, just a person with CP myself.

Please don’t work yourself into a panic thinking the worst for your daughter. By all means I’m not saying don’t worry, just don’t let “the worst” consume your thoughts. Take a moment to breathe.

CP is caused my injury to the brain in the first 3 years of life, some before birth or during delivery. During these first years the brain is also able to learn to compensate very well and even if “part a” is damaged sometimes “part b” or “part c” can learn how to do the job of the damaged “part a.” It just takes time (and it wont always work that way.)

I wasn’t diagnosed with CP until I was 18 months old. I had a very tramatic premature birth and weighed in at 3 lbs 8 oz.

Even though I communicated quite well, I was very far behind in my motor development and didn’t even craw until I was 18 mos. I’m sure it was very easy to tell before then that I had a problem, my muscles were extremely tight and I was very stiff. Yet there were probably good reasons I wasn’t diagnosed until I was 18 mos. Since I’m not a doctor, I can only guess it was because they wanted to make sure I had CP (because there a lot of things that can look like CP) and that they wanted to be sure of how the CP affected me.

I have spastic quad CP and ataxia. It’s definately very noticable but people don’t always recognize what is wrong with me right away just with a look (but it doesn’t take long.) I have a funny gait, horrible balance, imperfect speach and fine motor issues. I can still walk well enough (not to say that I enjoy it or that I find it particularly easy--because I don’t) and I can live on my own with modifications and my mental capacity is not affected.

“Mild,” “Moderate” and “Severe” labels are subjective to begin with and noticing odd behavior early on or later doesn’t mean your daughter will be any more or less disabled than someone else.

CP is very unique to each person who has it. There is no strict criterea, that guarantees a child will have mild, moderate or severe CP. (There is something called a GMFCS for Cerebral Palsy but it is still not concrete. I would classify myself as a Level III with those guidelines.) Therapy, surgery, medication, modification, wheelchairs, walkers, crutches and braces can help people with CP live easier lives.

I hope I helped you some, and I wish you luck with the neurologist.

Last edited by Malwm01; 08-22-2007 at 02:20 AM.

 
Old 08-22-2007, 10:00 AM   #4
Senior Veteran
(female)
 
Join Date: Jul 2005
Location: Alabama, USA
Posts: 735
sobannon HB User
Re: Question regarding 6 month old daughter

Wow Mal,

You have given me alot of information that I didn't know. I am still pretty new to all of this. My 18 mo old son was diagnosed at 13 mo old. We knew that something was going on, we just were not sure exactly what. He started EI in May and in the last couple of months we have seen much improvement even with minimal visits until the outpatient therapy begins. He is not crawling and not at all enthusiastic at the thought of walking although his frustration is quite evident regarding his immobility. We pick up his DAFO's tomorrow which I am very excited about. Our PT is very confident that this will jump start his ability to walk (probably with a walker).

Again, thank you for the information.

Amy

 
Old 08-22-2007, 08:43 PM   #5
Senior Member
(female)
 
Join Date: Oct 2004
Posts: 240
Malwm01 HB User
Re: Question regarding 6 month old daughter

Hi Amy, I am glad I could help you out. Sometimes it's weird sitting here reading. When I type I never expect that my posts are going to mean much and it's an odd feeling knowing something I said meant something to someone else, lol. Everything I know comes from years of first hand experience of myself and others. And also, a lot of varied reading which I started doing in childhood.

It's fantastic that your son is in EI. In my own experience it was a great place. Some of my own most vivid childhood memories are from EI and preschool (I have this freakish ability to recall events from when I was very young. However, most memories are from my last two years at 3 and 4.)

I was 18 months to the day when I started EI and that was also the first time I ever crawled. (Which I don't remember, ) I started walking with a Kaye walker at 3, and progressed to forearm crutches at 6. Somewhere in the middle I ended up with AFOs, as well.

By my preteen years I was walking without the AFOs and crutches but now at 24, I am pretty meticulous at planning out how much I walk. And I'm noticing how smugged my walls are from holding them. (thanks to Mr Clean for his fab Magic Erasers!) If I lived in a more accessible home (currently I live in a small basement APT.) I have no doubt I'd have either crutches or a walker.

As for your son, one thing I've learned with 15 years of weekly PT (often times with other kids) some kids love it and some hate it. Hopefully, your son's age is just preventing him from understanding the good of PT and that he'll come around

Last edited by Malwm01; 08-22-2007 at 08:47 PM.

 
Old 08-22-2007, 09:33 PM   #6
Senior Veteran
(female)
 
Join Date: Jul 2005
Location: Alabama, USA
Posts: 735
sobannon HB User
Re: Question regarding 6 month old daughter

Well, tonight we were practicing standing at the couch and he actually attempted to cruise. It certainly was not perfect, but he attempted to pick up his feet to get to his daddy and the dog. I can't tell you how excited I was. It sure is the little things sometimes.

Amy

 
Old 08-23-2007, 08:29 AM   #7
Junior Member
(female)
 
Join Date: Aug 2007
Location: Chicago IL
Posts: 20
annie777 HB User
Re: Question regarding 6 month old daughter

Roxanne -
My son is now 3 and we were referred to see a specialist after his 6 month check up by his pediatrician. He started PT and OT at 7 months and then we added speech and developmental at 16 months. It was a lot of work and follow up but he has made steady progress and began walking with AFO's at 26 months. He is a super happy fun child, his speech skills are above his age range and he is starting in an Early Childhood class room next week. Aidan has moderate diplegic cp in his legs and the doctors would not officially diagnose until 18 months adjusted age( for him it was 21 months). Although all the appointments and therapists were a lot to manage for the family it has paid off so beautifully. So yes you can have a mild/moderate case of CP that can be detected early. Be glad she will get the help now - it allowed my son to catch up developmentally to his peers.


Quote:
Originally Posted by roxannemur View Post
Hi there,
I have 6 month old b/g twins. My daughter is showing signs of cerebral palsy and I am not coping very well at all. She just lies under her play gym and once in awhile will reach up with one hand to play with her toys. Oddly, though she does switch which hand she uses but does not bring her hands together. If you hold a toy out to her it is like she doesn't know what to do with it. Her head and neck control is great and she does bear weight on her legs. I have noticed that when she is lying on her back her legs tend to be straight out and a bit stiff. I have an appointment with the neurologist in a few weeks.

Can you please tell me -- if she is showing signs this early am I in for a severe diagnosis? Has anyone had a child show signs at 6 months and turn out to be mild? It seems like everything I read says that the mild cases aren't diagnosed until 2 or 3 so am I right to assume she will have it badly?

Thanks so much for your advice.
Roxanne

 
Old 08-25-2007, 03:18 AM   #8
Senior Member
(female)
 
Join Date: Feb 2007
Location: Gold Coast
Posts: 153
KarimsMUM HB User
Re: Question regarding 6 month old daughter

Hi Roxanne,
My son (now 3 1/2) was diagnosed with spastic diplegia at 18 months, a typical age for diagnosis I've noticed. At 6 months he was not able to bring his two hands together if lying on his back. He could hold a toy for a short time but not transfer it to the other hand. His head control was non existent until at least age one. Karim has mild to moderate cp and rate about a three on the GMSCS. But if you are going to look up that system just be aware it is really only a guide for age 2 and above.
It can be the most frustrating thing feeling there is something wrong. If in doubt get some therapy anyway. The therapists that deal with cp children have a knack for picking things up anway and may be a great source of info for you.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Question Regarding Cysts sivyaleah Cancer: Breast 7 02-05-2008 10:57 AM
bath tub safety question luckydarlin Infant Care (up to 18 months old) 14 10-27-2007 05:59 AM
Colonoscopy Question Please? Arkayngyl Cancer: Colon 22 01-25-2007 08:18 PM
Question 14 1/2 month old Momof2kids2005 Children's Health 0 05-10-2006 08:12 AM
question regarding very sick 19 month old worriedmom2006 Children's Health 5 04-07-2006 06:40 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Baclofen
Botox
Diclofenac
Neurontin Prevacid
  Potassium
Tegretol
Tylenol
Valium
Zanaflex




TOP THANKED CONTRIBUTORS



KimmieDee10 (11), yankeegirl (10), Spookysmommy (4), akiva (3), KarimsMUM (2), Jar24 (2), NickB (2), WMCR2001 (2), vermontcp (2), Basswife (2)

Site Wide Totals

teteri66 (1182), MSJayhawk (1015), Apollo123 (913), Titchou (862), janewhite1 (823), Gabriel (763), ladybud (760), midwest1 (671), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 11:31 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!