changing consultant! - Cerebral Palsy Message Board

berkshiregirl-2 · 12-03-2007, 05:23 PM

hi i'm 24 with cp i was under a consultant when i was younger but decided not to see him anymore as he kept giving me false promises on surgery. I have been having botox injections but i don't think they work as well anymore. I have also been under a physio and she think's surgery would be a good idea now, but not sure to go about it.
Has any one else had a simular situation

Freestyles · 12-04-2007, 05:13 PM

Hi Berkshiregirl,

How does CP affect you? I'd be interested to hear about your experiences with Botox. I've tried botox once with some fairly unfavorable results.

I had about 6 injections in my left calf muscle and it seemed to contribute to foot pain and even flatter feet. As you know the effects wear off in a few months so I was lucky in that sense!

Hopefully your experiences were a little better than mind.. With respect to finding a medical practicioner that understands CP in adults, from my experience they have been few and far between.. I'm in seach of one too.

Lori88 · 12-05-2007, 06:54 AM

I'm 21 with mild left-sided hemiplegia. I'm not sure if I'm interpreting this right, but if you are looking for a new orthopedic surgeon, I currently see one of the only adult practitioners in the country that specializes in reconstructive neuroorthopedics. She's in Philadelphia PA at the Uniiversity of Pennsylvania and her name is Dr. Mary Ann Keenan. ****** the name to find out more information.

Hope this helps.