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Old 12-18-2007, 12:18 PM   #1
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Steffers2318 HB User
Speech/Swallowing and CP

Hi everyone,

I wanted to ask about peoples' experiences with speech and/or swallowing problems. What have you (or your child) experienced? What treatments were recommended for those problems...did they help? Or are there other methods/treatments you've heard of and would be interested to learn more about?

Sorry, I know that's really vague, but hopefully someone will understand what I'm asking . For example, I remember a few adults with CP on here mentioning that they developed swallowing problems gradually...have others had that happen as well?

 
Old 12-26-2007, 07:26 AM   #2
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open_the_door HB User
Re: Speech/Swallowing and CP

Quote:
Originally Posted by Steffers2318 View Post
Hi everyone,

I wanted to ask about peoples' experiences with speech and/or swallowing problems. What have you (or your child) experienced? What treatments were recommended for those problems...did they help? Or are there other methods/treatments you've heard of and would be interested to learn more about?

Sorry, I know that's really vague, but hopefully someone will understand what I'm asking . For example, I remember a few adults with CP on here mentioning that they developed swallowing problems gradually...have others had that happen as well?
My son has CP spastic diplegia. As an infant, he had really bad reflux. Especially if he drank too fast. I always thought that he was so hungry, and he would suck the bottle so fast which would make him have reflux really bad(he is a twin, and his twin didn't do that). Anyways, as he got older(18 months), it was very difficult for him to chew cereal pieces, veggies, or meats. I always pureed everything because it was just easier to feed both boys(they got used to it, and it made their mouths lazy). It caused them both to be very delayed in speech and chewing. Peter had the swallowing problem when it came time for him to sit in his rifton chair(I always fed him in a swing and they are a bit tilted). When he had to sit straight up, he had a harder time controlling his head and with chewing and swallowing. He got diagnosed at 2 years of age with CP. The speech therapist has given me exercises for his mouth and tongue to strengthen it. He is now 3 years and 3 months old. When he is tired, he has a hard time chewing meats. I still give him a bottle in the morning for his prune juice(for constipation), and in the afternoon for his coco, and again the in the evening for more prune juice. I give him a cup with straw throughout the day. I need to stop with the bottle, but that is how I push the important liquid. It has been a long road, and I've been doing it myself because hubby is deployed again. He deployed when the boys were 5 months old(2 months corrected age) they took a bottle every 3 hours, and I did it myself. He was gone for 16 months, and then we got together for 5 months, and he redeployed for 15 months. 2005 was a blur, but myself and all 4 kids got through it. I got alot of good info. on the internet, bought alot of books from amazon, and I have survived. Only 7 more weeks before hubby comes home for good.

I hope my info. helped. Take care....

 
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Old 12-27-2007, 07:52 AM   #3
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Steffers2318 HB User
Re: Speech/Swallowing and CP

Thanks for the detailed response! I hope using a straw gets easier for him and glad to hear your husband will be back home soon! I'm sure it's tough but it sounds like you've been doing a good job

 
Old 12-29-2007, 02:25 PM   #4
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Robin4007 HB User
Re: Speech/Swallowing and CP

When I drink hot liquids I cough alot and I'm not sure why??!! Someone once told me its probably because the muscles in my throat are so relaxed with warm liquids vs cold liquids. Other then that things are great with my swallowing!! Happy New Year Steffers!!

Robin
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Robin- right sided Hemi plegic/Spastic CP

Make the best out of life, it's the only one you have!

 
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