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Old 03-31-2009, 02:41 AM   #1
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Question Cerebral Palsy and Stem Cell Therapy

Good morning everyone ! This is my first post !

We have an adorable little boy that has CP. He's just over 2 years old. I'm seriously considering getting him some stem cell therapy in Germany as they have a stem cell center over there.

Has anyone on this forum had experience with Stem Cell therapy in children (good or bad experiences?)

Thanks kindly.

Hardeep.

Last edited by HardeepRai; 03-31-2009 at 03:49 PM.

 
Old 03-31-2009, 11:48 PM   #2
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VanessaJ HB User
Re: Cerebral Palsy and Stem Cell Therapy

We haven't dont the stem cell since it seems still too new try. B

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Old 04-27-2009, 05:48 AM   #3
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erinsmum HB User
Re: Cerebral Palsy and Stem Cell Therapy

I too would be interested in how stem cell therapy can help my daughter. Although her problems are very mild, her walking is affected and and I would like to find out any information which would help her to walk better. It seems to be quite difficult to find out information about this in this in the UK. When you go on the internet, you only seem to get clinics in Germany advertising themselves.

 
Old 05-05-2009, 07:27 PM   #4
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vermontcp HB User
Re: Cerebral Palsey and Stem Cell Therapy

My understanding is that stem cell therapy is in a very preliminary stage for CP. Some doctors I have spoken to do not think it will prove very useful for this condition, because CP involves so many different issues. I'd caution you to think very seriously about letting your child be used in what is currently an experiment. Your child is still very young. When my son was about to get his hamstrings lengthened at 14 (he's 16 now) his biggest worry was that it would make him "normal." It may be hard to believe at your stage, but he thinks he has had a lot of advantages in life because of his CP. It's also a big part of his identity. The surgery helped a lot, but was not a cure. He still walks on crutches, but he's very happy with his life. No parent wants their child to suffer. I understand your wish to do something that would make the CP go away. But, trust me, you may feel this much less strongly as your child develops. At this stage, stem cells could as easily make things worse rather than better. Be cautious.

 
Old 05-07-2009, 10:35 AM   #5
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tootsie1 HB User
Re: Cerebral Palsey and Stem Cell Therapy

There are clinics in the dominican republic and China and Mexico. We are
were also looking at Stem Cell. Do not really trust the Dominican Republic or
Mexico clinics. China seemed promising as well as Germany but of course
is still quite risky. Hopefully in a few years there will be something in the
US or Canada. The most amazing results and the most hope we have received for CP in regards to seeing, crawling and walking is through
the Institute for Human Potential in Philadelphia. No surgeries, just plain
common sense, treating the injury not the symptoms. Cerebral Palsy is
a symptom of the brain injury. A Must read is the book "How to Care for Your brain injured child" by Glenn Doman. Daughter has recently begun the program for our 10 month old grandson.

 
Old 06-18-2009, 04:50 AM   #6
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Re: Cerebral Palsy and Stem Cell Therapy

Hi,

We've tried stem cell therapy twice since the last 7 months with Dr. Geeta Shroff in Delhi, India and have seen definite improvements, including improvements visible in Spect scans of the brain.The best is yet to come though. our son is 2 years old and has CP.

Vaibhav

Last edited by moderator2; 06-18-2009 at 05:48 AM. Reason: posted contact info - please read the posting rules

 
Old 06-18-2009, 12:02 PM   #7
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tootsie1 HB User
Re: Cerebral Palsy and Stem Cell Therapy

In my last post I mentioned we did not trust the DOminican Clinic or the Mexico clinic. Since that time we have done more
research and have decided to try the Dominican Clinic. We go
in August. Will let everyone know how it goes. We hope you will wish us the best!! Talk later

 
Old 06-22-2009, 12:06 PM   #8
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tootsie1 HB User
Re: Cerebral Palsey and Stem Cell Therapy

It is more than the CP that affects our granson so we are hoping for any amount of improvement in many areas. Will let you know how it goes.

 
Old 03-30-2011, 02:00 AM   #9
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cpmother HB User
Re: Cerebral Palsy and Stem Cell Therapy

Vaibhav,

I am looking at a possible diagnosis of CP for my son and looking at options, can you let me know how are things at your end, I am planning Dr. Shroff's treatment and would like to know if you found it helpful...

thanks a lot in advance.

 
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