I too would be interested in how stem cell therapy can help my daughter. Although her problems are very mild, her walking is affected and and I would like to find out any information which would help her to walk better. It seems to be quite difficult to find out information about this in this in the UK. When you go on the internet, you only seem to get clinics in Germany advertising themselves.
My understanding is that stem cell therapy is in a very preliminary stage for CP. Some doctors I have spoken to do not think it will prove very useful for this condition, because CP involves so many different issues. I'd caution you to think very seriously about letting your child be used in what is currently an experiment. Your child is still very young. When my son was about to get his hamstrings lengthened at 14 (he's 16 now) his biggest worry was that it would make him "normal." It may be hard to believe at your stage, but he thinks he has had a lot of advantages in life because of his CP. It's also a big part of his identity. The surgery helped a lot, but was not a cure. He still walks on crutches, but he's very happy with his life. No parent wants their child to suffer. I understand your wish to do something that would make the CP go away. But, trust me, you may feel this much less strongly as your child develops. At this stage, stem cells could as easily make things worse rather than better. Be cautious.
There are clinics in the dominican republic and China and Mexico. We are
were also looking at Stem Cell. Do not really trust the Dominican Republic or
Mexico clinics. China seemed promising as well as Germany but of course
is still quite risky. Hopefully in a few years there will be something in the
US or Canada. The most amazing results and the most hope we have received for CP in regards to seeing, crawling and walking is through
the Institute for Human Potential in Philadelphia. No surgeries, just plain
common sense, treating the injury not the symptoms. Cerebral Palsy is
a symptom of the brain injury. A Must read is the book "How to Care for Your brain injured child" by Glenn Doman. Daughter has recently begun the program for our 10 month old grandson.
We've tried stem cell therapy twice since the last 7 months with Dr. Geeta Shroff in Delhi, India and have seen definite improvements, including improvements visible in Spect scans of the brain.The best is yet to come though. our son is 2 years old and has CP.
Last edited by moderator2; 06-18-2009 at 06:48 AM.
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In my last post I mentioned we did not trust the DOminican Clinic or the Mexico clinic. Since that time we have done more
research and have decided to try the Dominican Clinic. We go
in August. Will let everyone know how it goes. We hope you will wish us the best!! Talk later
I am looking at a possible diagnosis of CP for my son and looking at options, can you let me know how are things at your end, I am planning Dr. Shroff's treatment and would like to know if you found it helpful...