If you think your situation is bad!!!..... - Cerebral Palsy Message Board

NayaB · 04-24-2009, 06:29 PM

Hi from Dominica W.I. (Caribbean) My son is 19 months and was diagnosed as having cp since he was 3 months. he was extremely stiff and cried like a never-ending thunderstorm.....the crying has only decreased from 85% to 80%...not much of a difference!!! i have no idea what what to do. we try everything under the sun to try comforting him but it still does not stop....we are awaiting an appt date to travel to Barbados to do an MRI ...but in the mean time this is so frustrating........please help!!

nwmom · 04-24-2009, 06:58 PM

Have you had him checked for reflux? That may be making him cry a lot.

NayaB · 04-25-2009, 04:50 PM

Quote:

Originally Posted by nwmom

Have you had him checked for reflux? That may be making him cry a lot.

the docs here told me he does not have reflux......they could not even diagnose him...it was done in Barbados.....i dont trust the docs here that y i need an "outside" opinion.

nwmom · 04-25-2009, 06:55 PM

Man, I feel for you. That's rough when you can't figure out how to help your child feel better. Noah cried a lot, too. I'm trying to remember what we tried...he slept on a foam wedge for his reflux, we walked him up and down the street, played ocean sounds and soothing music, mobiles...I can't remember what else. Best of luck to you! Keep us posted.
nwmom

broke as a joke · 04-25-2009, 08:32 PM

OMG,,. boy does your story sound so clear to me,,,,, our second son,, we had him and brought him home,,, he'd cry from 10 in the morning to 10 at night till he was exhausted and went to sleep,,, It was acid reflux,, i told my wife to take him to another doc,,(his Peditrician actually delivered my wife when she was born,, he said he's spoiled just lay him down and let him cry,,,) she saw his partner in his office on his next visit,,, i know exactly whats wrong with him, He said,, he said acid reflux,,, the fix he prescribed him zantac for a week,, i dont know what it did but,, 9 straight months of nonstop crying from 10 am to 10 PM everyday,,,

anyway,,, a weeks prescription of zantac and it stopped completely,,, i want to strangle the first doc,, we had him in the ER 15 times,, they said he need to see his peditrician cause there is something wrong with him,,,i said i know it and then he would tell us he's spoiled just lay him down and let him cry,,,