Re: i have a son of 11 who cp, i have no one to talk to
Hi there, I feel for you. I have a daughter that's almost 3 with quadraplegic cp, but apparently she doesn't 'present' as a typical case of cp. She's been classed as level 4, in short means chances are she'll never walk or stand independently. But mentally she is extremely bright, she has no speech problems, or drooling and swallowing problems.
Do you have support systems in Eng? (I'm in Australia), here we have Early Intervention, and I'm with a group called Scope, they are my lifeline, not only do they supply the physio and OT, but the socialisation with other parents of kids with cp. Once every 3mths we have a cuppa and a chat while the therapists entertain the kids so we can talk about how we deal with things, what works, what doesn't etc etc. We also have hydrotherapy once a fortnight with Scope, that gives us another opportunity to 'mingle'.