It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Cerebral Palsy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 05-13-2009, 01:37 PM   #1
Join Date: May 2009
Location: nottingham,england
Posts: 3
peesandgravy HB User
Smile i have a son of 11 who cp, i have no one to talk to

My son has just turned 11 and has got cp in both legs and all the right hand side. I dont have any one to talk to as no one i know as has a disabled child like mine i feel so alone sometimes and that i have to struggle on my own. If any one could help me i would be gratfull

Sponsors Lightbulb
Old 05-13-2009, 08:13 PM   #2
Join Date: Aug 2008
Location: Melbourne, Vic, Australia
Posts: 52
Leaciesmum HB User
Re: i have a son of 11 who cp, i have no one to talk to

Hi there, I feel for you. I have a daughter that's almost 3 with quadraplegic cp, but apparently she doesn't 'present' as a typical case of cp. She's been classed as level 4, in short means chances are she'll never walk or stand independently. But mentally she is extremely bright, she has no speech problems, or drooling and swallowing problems.

Do you have support systems in Eng? (I'm in Australia), here we have Early Intervention, and I'm with a group called Scope, they are my lifeline, not only do they supply the physio and OT, but the socialisation with other parents of kids with cp. Once every 3mths we have a cuppa and a chat while the therapists entertain the kids so we can talk about how we deal with things, what works, what doesn't etc etc. We also have hydrotherapy once a fortnight with Scope, that gives us another opportunity to 'mingle'.

Old 05-14-2009, 04:46 AM   #3
Join Date: May 2009
Location: nottingham,england
Posts: 3
peesandgravy HB User
Re: i have a son of 11 who cp, i have no one to talk to

all i get is his physio every week but i dont meet other parents who have the same as david is all on a 1 - 1 my son is dependant on crutches and the wheelchair. He also has learning diffulculties he also has to a speach inpediment and wears splints 24hrs a day. We also have scope but i dont know how to get in contact with them.

Old 06-03-2009, 04:04 PM   #4
Junior Member
Join Date: Apr 2006
Location: United States
Posts: 26
vermontcp HB User
Re: i have a son of 11 who cp, i have no one to talk to

I'm sorry you are feeling so isolated and alone. I know the feeling, in that we've never really found another kid with CP my son's age (now 17) around here. We've had a wonderful physical therapist and that helped a lot. Our son is pretty mainstreamed in school and his friends are able bodied. He walks on crutches. He's done well, but I sometimes think it would have been nice for him to know someone like him. We're in the States, but spent a year in England when he was smaller. I found Scope to be very useful. They have a website, so that might be a good place for you to get in touch. You are not alone. Many families have faced the same issues. Best of luck!

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Can you have herpes 2 for years? mskmal Herpes 17 04-21-2010 07:44 PM
does any one else talk to themselves marifer Bipolar Disorder 16 08-30-2006 10:32 AM
DO I really have PCOS? Jade1 Polycystic Ovary Syndrome (PCOS) 10 10-25-2005 02:27 PM
The 'Talk', aka 'The Birds and the Bees' alltaken Parenting Issues 17 12-06-2004 07:39 PM
The wrong person to talk to? Dark Stranger Mental Health 5 04-13-2004 01:13 AM
need to talk to someone crazysweets Teen Health 3 03-14-2003 12:32 PM
i would like to talk to other people with vns anna57 Epilepsy 1 06-28-2001 09:01 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 12:12 AM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2015 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!