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Old 07-27-2009, 03:31 PM   #1
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savien HB User
Angry Ive just been told my 10mth old has cerebal palsy :(

Can anyone help me? i dont know what to do/think or turn to!!
My wee man is 10nths, doesnt sit roll etc, his feet are a strange shape and dont bend! he cant straighten his legs fully either, im a wreck!!!
we went to see the surgen to see if he can fix his feet, he said its not his feet that are the problem, its his brain damage! i was stunned, i had no idea, he then said. You are aware he has cp.........I SAID, WELL I DO NOW!!!!!!!!
Not going to see the pedeiatrition until november! what do i do in the meantime?
Nobody see to care, they have just left us in limbo, with nobody to talk too.
please help
savien x

 
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Old 07-27-2009, 04:27 PM   #2
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Re: Ive just been told my 10mth old has cerebal palsy :(

This was moved to the Cerebral Palsy Board.

 
Old 07-28-2009, 07:32 AM   #3
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Re: Ive just been told my 10mth old has cerebal palsy :(

If he has cp..i would consider asking his surgeon if he or she can recommend you to someone who can help you understand more about CP. CP affects one side of the body, rendering it unable to function normally at first, but gradually over time and with the help of therapy, it can start to function. dont be afraid to ask his surgeon questions. i mean..bombard him with questions until he can recommend you to someone. If your son's legs arent functioning right..if they cannot support him properly, I would suggest asking his surgeon to recommend you to someone who can help you find leg braces..they might help. I hope this helps...

 
Old 08-01-2009, 08:44 AM   #4
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Re: Ive just been told my 10mth old has cerebal palsy :(

Well, CP doesn't always affect one side of the body. CP is caused by brain damage that occurs before, during, or shortly after birth (because of a multitude of reasons, or sometimes for no discernible reason at all). The location and extent of the brain damage determines its effects. One thing that is certain, however, is that the brain of people with CP doesn't control one's muscles correctly, leading to overactivity and in your son's case, I think, spasticity or tightness. The muscle tightness is likely the reason he can't straighten his legs, and it probably pulled his feet into the abnormal shape.

That said: there are things that can be done--medicine, braces, physical therapy, and later possibly surgeries--to lessen and counteract this. But it was EXTREMELY WRONG for that doctor to 1). just drop the diagnosis on you like that when he should have known by looking through the case history and talking to you that you weren't aware of the CP, and 2). not give you any kind of resources, referrals, or a next step to take. I don't blame you for being upset.

As for what to do, well if I were you I'd want to talk to a reputable and appropriate doctor about the situation ASAP, and get a definitive diagnosis. In my opinion, considering the circumstances, a good pediatrician should fit you in for an earlier appointment if you call and explain the situation. If that doesn't work (or perhaps even if it does), I would also contact a local United Cerebral Palsy office, if there is one* inappropriate website link and related information removed by hb-mod, moderator *

The important thing is, to get a diagnosis and talk to a doctor who knows what he/she is doing (unlike that first one you saw!). If either of the two things above do not work, look in the phone book for a (pediatric, if possible) neurologist and start calling them/explaining the situation/attending appointments until you get help.

Good luck--keep us updated!

Last edited by hb-mod; 08-01-2009 at 11:55 AM. Reason: Please do not post instructions and/or links to commercial websites. Please read and follow Posting Policy. Thanks! :)

 
Old 08-04-2009, 08:52 PM   #5
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Lightbulb Re: Ive just been told my 10mth old has cerebal palsy :(

Your son needs testing. 1st thing....... Find out what kind of cp he has. Does he have c on one side or all limbs. As far as 10 months, does he do other things that 10 months olds do? Talk etc? Do not think about any surgery right now, his bones are growing right now. Concentrate on physical therapy. He needs a lot of stretching right now. Do not blame yourself for this. TaKE one day a time. Sttay positive and keep your faith!! Stay strong!

 
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