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Cerebral Palsy Message Board
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Old 10-05-2009, 08:59 AM   #1
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hassay HB User
Unhappy plz plz help us

i m a mother of 14 months old son ,,on 4th month he started his first seizure ,now he is on phenobarb and velporate too,,,
plus he cant sit talk and crawl.and i think he cant focuse well on his left side.now he is 14 months he start screaming while lying on bed and he wants to hold him all the time while up.we have no good service and guidence for such child in our country.i need real advise what should we do to help our child to make himable to do his own work

 
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Old 10-09-2009, 07:29 PM   #2
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nwmom HB User
Re: plz plz help us

Do you have any kind of pediatric physical therapy places there?

 
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Old 10-13-2009, 06:11 AM   #3
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Re: plz plz help us

thanx for the reply yes we have but i do all that at home i learn form experts but he is still not holding his neck and cant sit ,is there any kind of surgry needed?actually doctors here have all dalying cuz they said time tell us? but i think that its use less to wait ?cuz it can be too late by the time

 
Old 10-13-2009, 07:02 PM   #4
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Re: plz plz help us

I hope you can get the answers you need. I remember that my son couldn't hold his head up for awhile and had trouble sitting, too. They told us to put him on his tummy a lot to strengthen his neck. I think we had him try to reach up and out infront of him for things, too. I can't remember what we did to help him sit. Keep us posted on how you're doing!

 
Old 10-14-2009, 06:43 AM   #5
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Re: plz plz help us

hello
yes i think this can help us alot,but showing him things can be difficult for him to follow,cuz my son is having strange eye movement,,,he use roll his eye ball and alwayes look at his rite side .he is 14 months old but cant recognize me or want to come in my arms. never show initiative but he use to lough and make some noice by screaming ,

 
Old 10-14-2009, 07:46 AM   #6
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nwmom HB User
Re: plz plz help us

Has he been to see a specialist about his eyes? Do you have a place like that where you live?

 
Old 10-14-2009, 08:29 PM   #7
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Re: plz plz help us

I am so sorry. I can't even imagine how frustrating this must be for you having no where to go for a proper diagnosis or treatment. You are doing the right thing by reading all you can, and looking for support on message boards like this. Maybe someone out there will see your message and have some ideas for you. I wish you had access to a medical facility that could provide you with some answers as to what the problem is. I only hope you have family around to help.
Like the other lady said, starting with lying on belly is probably a good first step to strengthen the muscles.

 
Old 10-19-2009, 08:21 AM   #8
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Re: plz plz help us

hello
thanks shandy for good wishes,and such a supportive message,this is realy needed,, during this tough time,yes i happy that nwmom Replied ,and guiding me ,thats wat i needed, lucky to be on HEALTH BOARDS"

 
Old 10-19-2009, 08:33 AM   #9
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Re: plz plz help us

Quote:
Originally Posted by nwmom View Post
Has he been to see a specialist about his eyes? Do you have a place like that where you live?
no i did not cuz neurologist said that there is no need to go to an eye doctor cuz they cant help u to this matter, but as i visited some sites regarding cerebral palsy i studied there that these childrens may have visual impairment and there is a treatment ,you tell me should i go to an eye doctor ?plz suggest me cuz i also think that how can he learn if he cant observe ...

 
Old 10-20-2009, 10:35 PM   #10
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Re: plz plz help us

Hi, I read further and noticed your son having eye problems. My little boy has big brown eyes that are just beautiful and he uses them to get what he wants even as a little baby. One day he looked up at me with his eyes crossed. I called his speech therapist right away as we had become great friends. She said sometimes the muscles in the eyes are weak and that it was probably nothing. I did worry though because he was suppose to be blind in the first place. He did work it out and now many years later he will cross his eyes just to get me to laugh. Don't give up keep showing him lots of things and pictures, especially black and white pictures (funny hugh?) but that is suppose to help the eye focus, and maybe if you can have him follow these things with his eyes to strengthen the eye muscles.
God Bless!

 
Old 10-21-2009, 01:19 AM   #11
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Re: plz plz help us

hi
thanks you! ldunson for the instructions i ll definatly follow them,,,

 
Old 10-22-2009, 11:31 AM   #12
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Re: plz plz help us

Hi there,
My son has what they call a lazy eye where his eyes cross. His eye dr. said if he wears his bifocals til he's 9 or 10 years old, the crossing will be fixed and he won't need them anymore. Not sure from your description if it's lazy eyes or something else. When he was younger, the Dr. had us put a patch over his strong eye for a couple of hours every day to strengthen the lazy eye.

 
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