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Old 01-06-2010, 11:59 AM   #1
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PamNor58 HB User
Question Adolescence

My granddaughter is 14 and has cerebral palsy. Since she will be starting her periods at any time, I was curious how other families deal with this. She is very high functioning, but does not possess the motor skills to do what is necessary for cleanliness on her own. Any comments or advice will be very much appreciated. Thank You.

 
Old 02-01-2010, 08:26 PM   #2
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Lightbulb Re: Adolescence

Pam,

To what degree is she able to care for basic hygiene issues on her own (ie. dressing herself) Is she generally able to use the bathroom and clean herself without assistance?

She may love the idea but, if the answer to the above questions is yes, what about using an undergarment like depends and cleaning with moistened feminine wipes (just for the duration of the period)

If the above is not an option, does she have the motor skill and grasping strength to use a peri bottle for cleaning and the larger undergarment inserts like those given by maternity wards after childbirth?

I hope these suggestions are of some use even if only as jumping off point.

best of luck,
gracie

PS For all your frustrations, and all those to come, always know you are playing a priceless role in her life. I am married to a wonderful man and my parents are amazing people, but when I look back at my life my grandmother's unending, non judgemental, selfless support is still what I think of as my most important influence *she will turn ninety next month

 
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Old 02-02-2010, 05:47 PM   #3
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Re: Adolescence

Gracie,
Thanks so much for your reply. Ashdon is a joy to all of us. I have them every other weekend, and I am so thankful for the relationship that has developed between Ashdon and her two brothers and my husband and I. I am not sure that she would be able to clean herself well enough with the wipes. She has someone at school to help her when she needs it, but I hate to put her in the position of needing help with such a personal thing. I am really worried about this situation and thank you for yolur reply. It has given us something to think about.

Thanks,
Pam
PS- any more thoughts would be appreciated.

 
Old 02-05-2010, 01:46 PM   #4
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Lightbulb Re: Adolescence

Pam,

I assume from your response that you do not think she would find a peri bottle effective. Also, I can absolutely understand why she would not even want you to suggest the depends or a similar product, particularly if there is a chance that her school assistant would be privy to that need.

Have you considered consulting her obgyn about the new options they have for pills that make it possible for a woman's menstruation to flow only 3 or so times a year? It would not eliminate the problem but it may make it more manageable or, at the very least, buy you some time to come up with something viable.

Please understand I do not know much about them, their side effects, effectiveness in curbing the bleeding, or the risks etc.(I have never used them myself) And, I am not advocating birth control pills for a teenager as such, but just as a discussion point with an obgyn concerning her best options for independent care.

Will let you know if I can think of anything else.
Best of luck,
gracie

 
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