Re: Looking for information on the baclofen pump
Our daughter has the Baclofen Pump; overall it is very helpful to manage her spasticity. The pump is about the size of a hockey puck and is under the skin near the stomach. The tube is threaded around the inside of the body to the spine. We noticed a big difference compared to oral medication.
The one downside is that the first pump we had inserted failed to work very well, so she needed a replacement within a year. It does require surgery. There was no concern of paralysis, as far as I know, as the spine is only touched by a very small tube. The pump is refilled through the skin and can be programmed to deliver medicine exactly when you need it (more at night, for example).
Our daughter was so stiff much of the day she could do little for herself. Now her arms move more naturally, her legs are a little softer, and she can use switches and bring things to her mouth which, for her, was a big win. The benefit for her was more with the upper half of her body, but often that's based on where the tube is placed in your spine.
I would recommend it, but take the time to research to see if it's right for you. Good luck!
Last edited by estavares; 01-29-2011 at 12:38 PM.