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Old 05-02-2010, 07:09 AM   #1
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VZE47PDV HB User
40 years old with cp, i fell and having great difficulty walking

Hello,

I am about to turn 40 years old in June. I have had cp for these many years and have managed very well on a pair of crutches. On March 30th, I was walking in my driveway and fell. A that time, I dislocated my finger and went to the emegency room to have it taken care of. My finger was the only problem. On March 30th, I was walking fine and able to use my crutches to get around as I always had before.

It was not until about a week and a half later that I started noticing little problems.The most obvious one was increased difficulty standing. Even with my crutches, I could not stand for more than a minute. At this time, I was not really concerned because I was still able to walk.

Now, the problem has gotten worse and I can no longer support myself on my crutches. Last week, I had gone to my neurologist, the only thing he suggested was to increase my baclofen pills. When I went to see him, I was taken 30 mg a day. The baclofen makes me very dizzy and light headed so I told him I did not want to take anymore. I had to go to that appointment in a wheelchair which I never had to do before. I always walked in with my crutches.

It might be of interest that I can walk pushing a shopping cart or back of a wheelchair.

In a couple of weeks, I am going to see a doctor who I have seen many times over the years. I really believe he will know what to do or at least take steps to find out what the cause of the problem is. I am very excited. It is just difficult to get an appointment with him. As anyone with cp, experienced this type of problem? Any information, support or ecouragement you could offer would be greatly appreciated.

Last edited by VZE47PDV; 05-02-2010 at 05:32 PM.

 
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Old 05-02-2010, 09:50 PM   #2
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Join Date: Apr 2010
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CindyM99 HB User
Re: 40 years old with cp, i fell and having great difficulty walking

It's possible that with hurting your finger that now you don't "grip" your crutches in the same way and it's completely throwing you off. About 3 yrs ago I started gripping my right crutch differently and no matter what I did, my hand wouldn't go back to the old position. As a result, my right side is alot less flexible and I have a "fight" between my left side and right side. The left wants to run, and the right side can't keep up so walking takes a lot more energy. I avoid it some, but refuse to use a scooter for fear of "losing" my legs completely. CP gets worse in your 30's -40's. You'll see that others here have had the same issues. Personally, I don't think the doctors have a clue why (frankly, I don't think they're too worried about it either) I had an appointment with a "specialist" He told me to save my legs and use a scooter. No suggestion of therapy/pool other help because it's not covered where I live. Much better to throw me in a scooter/wheelchair that the govt will pay for.

Be careful trusting others with your mobility. YOU are your best resource (and BTW I do much better pushing a shopping cart too--love motoring around) Best advice? Keep Moving and don't expect someone else to have the "big" answer. They won't.

Take it for what it's worth:-)

Last edited by CindyM99; 05-02-2010 at 09:52 PM.

 
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