Has anybody been to Dr. Campion at UNC in Chapel Hill, NC? We were thinking of taking our son Noah there for a second opinion on what to do about his foot. It seems he's not tolerating an AFO on his left foot right now--it breaks down the skin on his heel. His bones in his left foot are deformed from the spasticity before his SDR, and his foot is sort of shaped like an S. We've been waiting for three months for an opinion from WFUBMC, but our Dr. cancelled our appt. with the orthopaedic surgeon, because she wanted him to be evaluated in a group meeting back in March. That meeting keeps getting postponed; so Noah's been walking around without braces for months now.
I don't know the doc but i would certainly get another opinion. His AFO's should not break the skin, that means they haven't been moulded properly, they shouldn't even leave red marks. If he needs them then you should seek another opionion and get something done.
Doctors like to pass you around so keep looking and get him another docotor. Also even if no one knows the docotor, you've got nothing to loose if your son needs treatment.
I'm getting ready to take my daughter to Dr.Campion because WFUBMC called me and gave my child a disgnosis and they hadn't even seen her. I will NEVER go to WFUBMC. I know another parent who takes their child to Dr.Campion and they love him. Also he came highly recommended by our daughters physical therapist. Good Luck
We go to WFUBMC, and we've had some unprofessional experiences there, too. Thanks for the report on Dr. Campion--glad to hear it. We're going to go see him again in Sept. to ask him some more questions.