Re: need feedback re. heel cord lengthening
OK, we've decided what we're going to do. Dr. Campion at UNC had suggested that we do bi-lateral femoral de-rotational osteotomies (FDO) to correct his pronation and in-toe gait. He also wanted to do soleus and gastroc percutaneous lengthenings as well as botox the hamstrings and abductors. We were seriously considering this when we heard from St. Louis that Dr. Parks hardly ever recommends the FDO for his SDR patients. Then we sent videos to Dr. Parks and he said it looked like "too much surgery" to him. So we're headed up to St. Louis in December. The PT up there thinks he'll probably recommend heel cord and hamstring percutaneous lengthenings. We're trying to figure out whether to take a train or drive up there. It's an 11 hour drive for us.
I talked with another mom up there whose son had SDR when he was five. He never had another surgery. He's been stretching every day and is active in sports. He runs up hills to strengthen his legs. He's playing varsity football. She suggested we try strengthening first, but I realize that everybody's different. Although that sounds great, I think we're going to go with the surgery and then try the strengthening and sports things.
If this doesn't work, we may still have to get the FDO's with Dr. Campion someday.
We're hoping that the surgeries will help Noah fall less and that they'll help him be able to fit into his braces again so that he can get that extra stretching from the brace. I think we'll try to go some without the brace, too, so that he can strengthen some.
We're going to be in St. Louis a week and a half before the surgery, because of the Dr. appts. and then waiting for an insurance pre-certification. Does anyone know what we can do for fun while we're waiting for the big day? Has anyone ever stayed in one of the suburbs nearby vs. staying at the hotel near the hospital?
Dr. Dobbs will be doing the actual surgery--has anyone had any surgery done by him?
Last edited by nwmom; 10-16-2010 at 07:58 PM.
Reason: add a doctor's name