It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cerebral Palsy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-28-2011, 10:21 AM   #31
Senior Veteran
(female)
 
Join Date: Sep 2010
Location: texas
Posts: 1,349
jgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB User
Re: 41 with mild CP

God Bless you Janniejack, Really I though I was super woman to juggling everything and it wasn't intil The Dr. actually got in my face that I knew I needed to take an active approach to this. I tend to take care of others before my self But let me tell you the things you are going thru is normal I'll hope you find a good Dr. to help you. I notice you live in sidney is that like Austria I know thats terriblely miss spelled . Please know people care and this board is a good place to come to. Please keep us posted on your progress also. My prayers are with you.

 
Old 01-29-2011, 02:04 AM   #32
Newbie
(female)
 
Join Date: Jan 2011
Location: Sydney
Posts: 5
janniejack HB User
Re: 41 with mild CP

Thank you for your understanding. I was feeling so frustrated with tripping up and constant pain when previously nothing bothered me. Now I can even be standing still and then loose my balance!
I am from Australia but live now in Asia and finding anyone who understands here is very difficult. I hope to be able to see a doctor when I next go home but it is hard to find out who to talk to about it. Adult CP is just not so widely studied and information hard to come across.

 
The following user gives a hug of support to janniejack:
jgrangran (01-29-2011)
Sponsors Lightbulb
   
Old 01-29-2011, 06:43 AM   #33
Senior Veteran
(female)
 
Join Date: Sep 2010
Location: texas
Posts: 1,349
jgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB Userjgrangran HB User
Re: 41 with mild CP

Thats true you really need to find a DR. that understands that. You maybe could print articles about ageing with c/p maybe that would help your DR. Good Luck to you And God Bless You

 
Old 05-12-2011, 08:39 AM   #34
Newbie
(male)
 
Join Date: May 2011
Location: DFW Texas
Posts: 1
Diva Powers HB User
Re: 41 with mild CP

Quote:
Originally Posted by discovery1 View Post
Hi everyone,

I am a newbie here, have read this entire thread. I could have written any of the posts. I was told I had mild cp at about age 9. A slight limp with my right leg and stiff back on the right side were the only impediments I have. Got accused all my life of "limping" to get attention to the point of almost believing it to be true even though I knew it wasn't...... Became a Beautician which was my dream. Was told over and over that it was non-progressing, but after a few years of that, I knew I had to change professions, no energy at all by the end of day. I felt much older than others my age.

Got a "sitting type" job so I could be off my feet. Okay for about 10 years, then at age 50, starting falling repeatedly, sore/stiff right hip. Several years of PT, major flare ups with the pain in my back, finally forced to go on disability which totally devastated me. Felt so alone and knew nobody else with cp. From my research at the time, cp was still being described as non-progressive. However, during my current research, I discovered that there is now a term used to describe aging with cp called: post-impairment syndrome, after about 15 years of the medical community arriving at that conclusion. In the past, cp patients did not live as long as they do now, so not much attention paid to that group, focus was on children.

So, you see, we are really pioneers in this era of awareness of aging with cp. I am presently seeing a pain management dr. for injections in my spine as the pain is extremely bad in cold weather. Am on pain medicine different from what I had used in the past (began to affect my kidneys) which kept my pain in better control.

It is a journey we are all on and I am glad to see that attention is finally being given to this syndrome.

Take care


I almost cried when I read ur post! Its my story down to the Beautician thing! WOW! Im so glad to know Im not alone.

 
The following user gives a hug of support to Diva Powers:
discovery1 (08-07-2011)
Old 08-07-2011, 09:29 PM   #35
Newbie
(female)
 
Join Date: Dec 2010
Location: Midwest
Posts: 4
discovery1 HB User
Re: 41 with mild CP

So glad my info was helpful, and I can't believe it took me this long to find this board again.

 
Old 08-18-2011, 05:50 AM   #36
Newbie
(female)
 
Join Date: Aug 2011
Location: Co. Westmeath, Ireland
Posts: 3
tippexile HB User
Re: 41 with mild CP

Hi everyone,

I'm a newbie too. I'm living in Ireland. I'm 40 and have mild cp which affects my left side, noticable limp and reduced power in my left arm. I've got one daughter who's 3 yrs old. I was diagnosed when I was almost 4. Everyone had told my mum that I was just lazy etc. I was a very large baby(nearly10lbs) and I was born blue with the cord around my neck. I had a lot of PT when I was a child, no surgeries. About 10 years ago, I started to feel more unsteady on my feet, v lightheaded. My dr thought it was stress related as my Dad had been diagnosed with cancer. It got worse and worse, eventually a locum realised there was something physically wrong and referred me to a ENT specialist. It turned out that I have menieres disease(build up of fluid in the inner ear canal). Now it took years for me to get that diagnosis and my confidence is shot to pieces. I can walk but not for long distances and need someone with me. I'm fine in my own home if that makes sense. As regards my childhood, I had a pretty good one in comparison to some others. I was bullied for being different but it stopped when we moved when I was 8. My only fear is that my daughter might get bullied because I'm different. Anyway, I just wanted to say hello and that it's nice to finally talk to others who understand what I'm going through. Hope that you're all well.

 
Old 10-03-2011, 11:23 AM   #37
Newbie
(male)
 
Join Date: Oct 2011
Location: LondonEngland
Posts: 1
chetin12 HB User
Re: 41 with mild CP

I am a 41 year old male(Mild CP) married with 3 young children, all under the age of 5. I have 15 month old identical twins and feel that within the last couple of years my health has deteriated I feel more and more fatigued and I too suffer from muscle spasms, lower back/neck pain. legs feel heavy as the day goes on.

I find it hard to walk around towards the end of the day. My wife doesnt really truely understand my condition and feels that 'I am not pulling my weight' nothing could be further from the truth.

In desperation in order to boost my energy levels I have recently signed up to Juice Plus.
not sure if this will help I would be interested to see if fellow CP suferers are using this nutricional product.

I wish you the best of luck.
Chet from London

Last edited by moderator2; 10-03-2011 at 12:06 PM.

 
Old 10-04-2011, 08:26 AM   #38
Newbie
(female)
 
Join Date: Aug 2011
Location: Co. Westmeath, Ireland
Posts: 3
tippexile HB User
Re: 41 with mild CP

Hi Chet,

Hope that you are well. I understand that feeling of having no energy. I really have to get myself into the frame of mind of exercising again. I used to have more energy but since having my daughter and getting menieres, I just can't seem to find the energy anymore. I'm taking a good multivitamin and energy boost(kelkin boost) drink in the morning and it seems to help a bit. It must be hard looking after twins, I was wrecked just looking after one! I guess that your wife is probably exhausted too and that's why she mightn't be as sympathetic as before. Have you talked to your gp, maybe they might be able to advise you on what to take to improve energy?

Mary

 
Old 10-12-2011, 11:55 AM   #39
Newbie
(female)
 
Join Date: Oct 2011
Location: Hereford
Posts: 7
stormzy1996 HB User
Re: 41 with mild CP

heyy i am a teen and i am currently studing for my GCSE's in May and i also have a part time and i am also a Dressage rider and aiming for 2016 paralympics. So i know what it's like to work hard and feel like i have the worlds weight on my shoulder' s but stay strong. Your husband is so lucky to have such a hard working wife and one day it will all pay off.


Always here if you want a little chat

Storm xxxx

Last edited by mod85; 10-13-2011 at 07:08 AM.

 
Old 10-13-2011, 05:43 AM   #40
Newbie
(female)
 
Join Date: Aug 2011
Location: Co. Westmeath, Ireland
Posts: 3
tippexile HB User
Re: 41 with mild CP

Hi Stormzy 1996,

Good luck with your GCSE's and the dressage. I wish I had learned to ride, I think I'd be too nervous now. Hope to see you in the 2016 paralympics, did you get tickets for 2012?

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Can mild asthma be left untreated? My Doc says lung Fibrosis possible if not treated dawnmn Asthma 4 07-05-2009 07:26 AM
Mild to severe C-spine canal stenosis- need your expertise, please! winged phantom Spinal Cord Disorders 9 02-07-2008 06:28 PM
Mild Dysplasia - Wait or Treatment? LCGirl Cancer: Cervical & Ovarian 19 06-12-2007 10:36 PM
Depression & Mild Arthritis lalc51 Disabilities 0 04-18-2007 06:07 AM
Is there such a thing a mild neuropathy? Inpayne2 Neuropathy 5 08-11-2006 09:09 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Baclofen
Botox
Diclofenac
Neurontin Prevacid
  Potassium
Tegretol
Tylenol
Valium
Zanaflex




TOP THANKED CONTRIBUTORS



KimmieDee10 (11), yankeegirl (10), Spookysmommy (4), akiva (3), WMCR2001 (2), vermontcp (2), Basswife (2), whitesugar (2), Potsy (2), angelcom34 (2)

Site Wide Totals

teteri66 (1180), MSJayhawk (1013), Apollo123 (909), Titchou (857), janewhite1 (823), Gabriel (763), ladybud (755), midwest1 (671), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 12:16 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!