My son has Spastic diaplegia and has recently been given an assessment that he is GMFCS level 3. I agree with what they have said and think that this is true to where he is now. My question is this, is he always likely to be assessed at a level 3 or could this change? I think I'm right in saying that as CP is non progressive he won't get worse, but could he become a level 2 with physio etc or is this not likely?
Hi there, I'm sorry if I get it wrong, but from memory your son is 2? Is that right?
I know my girl's GMFCS is level 4 and has been since diagnosis, but she still has come a long way. She can now bunny hop crawl, cruize furniture, walk with her standing ladder for short distances, walk in her Hart walker, pull herself up to the lounge to a standing position from a kneeling position and is now looking at trialing a new (simpler) walking frame, these are all things she couldn't do between 12mths and 2yrs ago. AND she keeps powering on
I also know a girl who has diplegia and at age 3 she was using a walking frame, age 4 she progressed to sticks and now at 5 she can walk unaided indoors and on level ground outside. So to me this sounds like her GMFCS has improved so live in hope and keep up the hard work with your boy.