Re: 15 month old baby girl diagnosed with spastic quadriplegia!
Hi there, what amazing results for Janna, you must be over the moon. For us it was the opposite, our initial diagnosis was for very mild diplegic CP (at 9mths) but by 18mths that changed to severe quadraplegic CP. Our daughter was full term, normal delivery and no issues until she wasn't meeting her milestones at 8mths. Aleacia is the same as Janna, her speech is perfect, she has no swallowing or drooling issues, no seizures and she is very bright for her age (she's 4 now).
For Leacie it's been a long road, with much PT and OT, an adductor release and 2 lots of botox she finally got herself bunny hop crawling around the house. We then got a David Hart Walker for her and that seemed a miracle to watch her walk. It's still very hard work but the Hart walker is a mechanical miracle. The gait training that walker provides and much PT she has just now started to use a reverse walker (very teary moment).
And although her hands are so affected by the CP she can still draw and colour-in perfectly, just differently to how other kids do it.
It's still a tough and long road, but I know we're up to the challenge and will cross each barrier as we come to it. I truly feel blessed to have Leacie, I believe she's made me and her siblings much better people.
And what bellagal said is so true, the fight to get each and everything for them is a tough battle and I've only been doing this for 4yrs. I am so not looking forward to losing our ECIS when she starts school, they are the most valuable help we could have.