Hey Lea how are you going, Thanks heaps for letting me know about this site I am hoping that we can find out heaps of info so that we can go in fully armed to the next appointment. Good suggestion about changing the name i was right on to that Rose..lol.
You are right about Prof he is amazing. He did M's adductor release in April this year. The surgery is now definately going ahead, so now we have to do alot of baseline tests so they have an idea as to how well it has gone I suppose. The neurosurgeon that is apparently doing the op is Allison Wray, who was one of the ones that operated on Krishna and trisna the siamese twins, so that is encouraging, I was sure to ask the doc if she had done an SDR before though hahaha.
I hope Leacie is doing well we will have to catch up one time when I am in melb and we can compare notes
Karimsmum Hi how are you that is a bummer about not having the op up there, I will def keep you informed of our progress. Have you thought of contacting RCH to see if they will do it.