Welcome aboard and thanks for the super interesting post. What you described essentially describes my current situation, bang-on.
A little background -
I'm 29 year old male with spastic diplegia and use 2 canes to get around. I work full-time, live on my own and my life is otherwise what most people would consider "normal"
A couple of years ago the doc put me on 0.5 mg of clonazapam for anxiety-induced spasticity. At first, this worked really well, it almost completely got rid of my anxiety, my flexibility greatly improved and I always found that when I chased the clonazapam with a couple of cups of coffee, it got rid of any drowsiness and made me focused and social.
Fast forward two years, I decided to slowly wean myself off of the clonazapam after reading one too many horror stories on benzodiazepine addiction,a completely flat mood, a limited attention span, and most importantly ZERO motivation, which I attributed to the clonazapam (this is all very unlike me). This was quite the journey The spasticity and anxiety returned worse than before, flu-like symptoms, chills, depressed mood etc. Now, I'm almost completely off this drug and only take it 1 - 2 days a week when absolutely needed.
My main problem now is lack of focus! I've been a bit of a scatter-brain for as far back as I can remember but nothing like this. There are days where I find it tough to type a 3 paragraph email without my mind going off in ten different directions, finding the right words etc. It's definitely becoming an issue both at work and outside of work so I made a visit to my primary doc and gave him the full goods.
Bluntly put he was of absolutely no help so I booked a follow-up with him for next week and I'll ask him to refer me to an ADHD specialist... Wish me luck!
What's fascinating is your finding that your coordination and flexibility actually improves as you increase your Adderall dose. I've sometimes had this result with OTC stimulants (caffeine, energy drinks etc.) Sometimes it's has a great effect where my balance and flexibility improve, along with my focus and alertness. Other times caffine just makes me stiff anxious and irritable.
From reading your post, I'm thinking that this is a matter of finding the right balance between the adderall, and baclofen (although, mixing an upper and a downer is very counter-intuitive for most docs.)
I've been doing some googling on this which is how I stumbled on to your post. There is some (very limited) research out there that says that a drug called provigil (essentially a stimulant like Adderall) is helpful for spasticity in kids with CP. The story is that the discovery was accidental as a patient with CP was actually looking to get treated for ADHD. Really fascinating stuff. Perhaps spasticity has more to do with brain chemistry than we originally thought??
My question for you: What's your current dose of Baclofen? I've been on the oral med (years ago ) and found that it was of no help. I wonder if you're actually getting better results because your combining the stimulant (adderall) with Baclofen? One without the other might actually be contributing to your ADHD symptoms. When were you first diagnosed with ADHD?
Sorry about all the questions... This is quite the discovery!