morrbid

Hi all,
I'm new here and live in the mountains in Colorado. My son, now 9 years old, was born prematurely as a result of my having HELLPS. He is vaguely diagnosed with either "extremely mild cp" or inutero stroke causing his right side to be more toned than the left. Because of the tightness of the right leg muscles he is developing quite a leg length difference and his back/hips are quite out of square when he is barefoot. He is very athletic, runs, plays soccer, baseball, swims, basketball, golf, hikes, and just recently is learning to snowboard (we tried skiing first but his lack of strength with the right leg made steering and stopping incredibly difficult). Our pt is at the end of her expertise and we're searching for our next step.

We have dealt with this with pt, hippotherapy, AFO, night time stretching AFO, custom insoles, and the right shoe sole being built up. I think the tightness of the muscles on the right, he's a toe walker unless I'm behind him going "heel toe heel toe that's the way it should go" and his hamstrings very tight also, the bones aren't being allowed to grow at the same rate as his left leg. There's probably a 1 or 2 inch difference depending on where in his growth spurt he's at.

I've heard tons of wonderful things about Dr. Nuzzo in New Jersey, but I'm having trouble finding a referral here in Colorado. Does anyone have any experience with Jason Rhodes at Children's in Denver? Shriner's Hospital? Any and all advice is welcome, I feel like we're starting all over again and I'm a bit lost.
Thanks