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Old 08-29-2011, 10:37 AM   #1
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my son doesnt walk or talk or follow commands at 19months

hello, i have a son at 19mths who doesnt talk r babble wave r point r follow commands i am very worried i have a scan on this spine as he as scarel dimple also there checking him for other things am thinking is cp one of them my doctor doesnt really give much away !! i also went to early learing hospital app he said he just looked laid back and was too young to asess although he did say it didnt look like austim, although my son can lift the remote and turn tv over and he can put a phone to his ear and no i dont constanly have him in front of the tv i read play sing everything i just dont no whats wrong i have a older daughter at 8 i can really see a deference i dont think its a matter of my son just being behind he stares into space for perids of time and at times his eyes roll he also sleeps alots i no i shd not complain bt id give any thing to have him at his proper satge of development he attends nursey i am now inrolling fulltime as i am trying to help him he also really hates change please is any one in the same sitiuation i feel so alone no one understands ?

 
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Old 09-01-2011, 05:34 AM   #2
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Re: my son doesnt walk r talk r follow commands at 19mths

You should have him evaluated by a nuerologist, an older specialist if possible since younger doctors sometimes just to conclusions.It may just be a normal delayed development. If your Doctor doesn't explain things to you and allow you to ask questions you should leave them. This is simple. It is your child and only you are responsible for their health. The doctor is there to help you and if they do not want to work with you you should find someone else!

 
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Old 09-05-2011, 03:15 PM   #3
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Re: my son doesnt walk r talk r follow commands at 19mths

hi yes i no i am so worryed i have app next monday and a scan on his back end of sept he also has petus examintion but i just dont no what could be going on some days r gud others r bad were he doesnt even wanna hold his head up at times he also has runny nappies lots he doesnt understand commands do you think cerbal palsy ? what is a nergolist

 
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Old 09-06-2011, 07:04 AM   #4
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Re: my son doesnt walk r talk r follow commands at 19mths

I don't know what it may be. CP usually comes with tightness in the muscles. A nuerologist is a doctor for the nerve system who specializes in the message the brain send to the rest of the body.

I know the fear and concern you are having. I went through it also when we were testing my duaghter. The bottom line is that we cannot be in control of these situations and worrying wont help our child. If indeed our child is challenged, the best thing is to be relaxed and therefore be able to help them in the best way possible.

I like to look at it as a competition. Worry doesnt help but getting energized to deal with the challenges facing us is very helpful.

Are you religious?

Religion offers a mechanism for inner support and belief that all is for the best and if there are health issues it was predestined.

My heart is with you!

 
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Old 09-06-2011, 12:13 PM   #5
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Re: my son doesnt walk or talk or follow commands at 19months

that is so nice of a message unfortually i worry all the time my husband would be like you and his ready to face the challeage you no some times i just dont no he can be very loose with his muscles in the term lies back alot etc i have inrolled him full time in nursey i will miss him loads bt am trying to do any thing that will help he normally is in parttime . what was wrong with your daughter if you mind me asking at this age its getting more noctieable that he isnt doing any thing its like his we legs just arent strong enough although he does walk along furtuire

 
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Old 09-06-2011, 01:24 PM   #6
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Re: my son doesnt walk or talk or follow commands at 19months

My daughter has Cerebral Palsy -CP-. She is thank God doing well though she didnt start walking until she was 2.5 years old. She still walk with a limp.

That is wonderful that ytour son can walk holding on to furniture. That probably shows that he has muscle control to be able to walk. Some kids start late. I have 14 month old now who sounds like your son but I am not worried. He is behind in everything but I am confident that he will catch up!

 
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Old 09-07-2011, 10:50 AM   #7
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Re: my son doesnt walk or talk or follow commands at 19months

thats great that your daughter is walking when was she dignoised has your son got cp my son also grins his teeth plays with shadows i no it sounds strange but just trying to figure out the signs ect what did you notice ?

 
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Old 09-08-2011, 05:19 AM   #8
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Re: my son doesnt walk or talk or follow commands at 19months

It was a long time ago but I think she was not crawling after 13 months old. So we took her to a doctor who told us everything is ok. Then we went for a second opinion and the doctor diagnosed her. I learned a lesson from that that although young doctors are good people, it is not good to trust them on life issues. There is some wisdom and life experience that older doctors have and I therefore prefer them for serious things.

I have had many medical emergencies myself or with my family and always find the young doctors to be less capable of understanding situations.

 
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Old 09-08-2011, 11:03 PM   #9
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Re: my son doesnt walk or talk or follow commands at 19months

Hi there, has any of the doctors mentioned Spina Bifida Occulta to you? Scaral dimple can be an outward sign of the disorder. It's the mildest form of Spina Bifida and can sometimes cause weakness of the legs or incontenance.

I hope you get some answers when you have your specialist appointment.

My daughter has CP, she was diagnosed at 9mths. She can't walk but can crawl in a bunny hopping fashion. She also doesn't have any vocal or cognitive problems, but we are very lucky there considering the level of her CP.

 
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Old 09-09-2011, 02:07 PM   #10
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Re: my son doesnt walk or talk or follow commands at 19months

hi there thanks for replying yes he is due a scan on his back at the end of sept cant wait !! he used to suffer conspiation when he was new born then i had him on movical i dont any more it was like the movical trainned him to go he runs all the time now is there any other signs of cp you can think of my we man doesnt talk wave he doesnt really understand any thing and his eyes always look like i have him doped up. he loves music lots really dances he loves playing with shadows and at times get frusted and hit his head i dont really no what to do i have an app this monday i dnt even no what there testing for medically ? can you test cp medically did you go threw this i suppose in n irelaND things are done alot different thanks for getting back
kate x

 
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Old 09-13-2011, 02:42 PM   #11
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Re: my son doesnt walk or talk or follow commands at 19months

hi well just back from hosiptal they think charlie needs to see a development doctor they said he is very behind and they have done full blood test for chromsones dna which i dnt really no why ? i think if i dont get answers soon i might go private do you think this would benifit ? my doctor said to me do you talk to him i flet like screaming as i talk and sing all day long i cant do any more

 
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Old 09-13-2011, 07:43 PM   #12
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Re: my son doesnt walk or talk or follow commands at 19months

Hi there, it sounds like they are doing what they can to find a reason. Unfortunately sometimes there just isn't an answer or known reason. I have this with my daughter. She has no known reason for her CP, 2 MRI's, Xrays, a couple of lumbar punctures and untold amount of urine and blood tests have been performed, testing for genetic, metabolic and every other known disorder imaginable and they just don't know why she is like she is.

To be honest, I'm quite happy with the CP diagnosis, for one I know it's not degenerative or life limiting AND it makes funding for different aides and equipment and the like so much easier. If she didn't have a specific diagnosis all this would be so much harder to get.

I hope you do get an answer though, not knowing is so frustrating... and I still find myself trolling the internet looking for disorders with similar symptoms. But I have to accept, there may never be an answer.

I don't know about where you live, but here in Australia although the public system is slow, it's very thorougher. If I were to go private it would cost a fortune.

Good luck... keep us informed, I'd love to hear more about how he's doing.

 
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Old 09-14-2011, 12:26 PM   #13
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Re: my son doesnt walk or talk or follow commands at 19months

hello there again thanks for replying i no what your saying yes it is great to have a dignoise in a way thats all i want now so i can get on with it i no i have along time to wait for a dignoise i hope something shows in a way so we can fix it if we can my husband is a bit laid back and just thinks hell come on but i have used the lets wait and see aproach for to long now need him sorted ill keep you updated fingers crossed also am adopted dont want it bringing up maybe things from side as i no i had a labino sister with medical problems so not really saying to much to mum as i dont want her worried in northern ireland the health service is quite good so illl just have to be patient and wait xx

 
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Old 09-22-2011, 02:11 PM   #14
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Re: my son doesnt walk or talk or follow commands at 19months

up date my charlie has took a few steps i noo it mightn seem much bt am over the moon i got blood test done last weel full blood count and chrones chromsone dna etc i rang to get results to be told i have to wait 3 mths for chromsone test the doct has the other results there he was ment to ring me all week and hasnt rand his sewrctary keeps saying he has the resluts he will ring i have had such a bad week charlie has moved up into a class of his age in nursey he is so unstelled he is getting so frausted that he cant do what the others can do he sleeps 2 sleeps now bwcause i had to ring manger *** every time a go to get him he is crying i feel so bad like i cant help him i no he should be getten help now i dnt no what to do its such a long progess hell prob be after 2 before i get answers i just cry and cry the manger in nursey says she thinks there is something under lying its so hard hearing it frm some one eles how long did it take your progess xx

 
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Old 04-12-2012, 03:56 AM   #15
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Re: my son doesnt walk or talk or follow commands at 19months

Wow I am new to the board and your boy sounds very similar to my 15month old. I have just started a thread re my son. Please keep us updated and believe me i know how exciting it is when our kids do something. I was so excited when my little man started pointing his finger just before 15months.
Good luck with it all and I hope you get some answers soon. For me what I am mainly waiting for is his MRI as with the slight slowing on the back of his Right Brain I know the Nureo is looking to see if there is anything causing it. CP is fine compared to other options ie a tumour.
Take Care

 
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