Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors
I had heel cord lengthen done when I was 3 years old, just similar to you, I walked on my toes too, but I now where hinged braces. I think I would had been diagnose later if I did not have gral mal seizures until 1992. In addition, nerve damage in my ears, and eyes sight problems.
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors
I am glad to find this site regarding to CP.. I was born deaf and CP... As I get older, my legs get tired so fast! I was worried that I might no longer walk any more. I went to deaf world expo not too long ago and I know maybe 10 people that have cp (with deaf) they also said they cant stand any longer anymore as they aged. We are all in our 40s... that is so unpleasant! It seems that excerise or strengten is not the way to go? I am confused... seems hopeless? thank you...
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors
Hi all,
I just found this site. I have had spastic diplegia since birth. I had achilles tendon lengthening at 7, and bilateral ITO at 15 (they cut and rotated the trochanter bones to straighten my gait) Since my eary twenties, I have had chronic pain from walking. I used asprin with codeine (bought over the counter in Canada), but stopped when I got pregnant with my son. At 27, a doctor prescribed Motrin and forearm crutches. After a few years on regular maximum doses of Motrin, I worried about kidney damage and stopped using it regularly. Walking with the forearm crutches caused damage to the nerves in my arms and hands. Walking became such a pain that I got an electric scooter at age 36. Today, I use a scooter outside and at work and a manual chair at home. I limit my walking with crutches because it causes so much pain in my arms, hands, legs, feet, and back.
The excercises that help me most are seated tai chi, leg presses, and recumbent cycling at the gym.
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors
Never give up hope. I love strength training and seated tai chi. Walking and standing are overrated. What we need is the right mobility equipment to do what we want to do. You can find used electric scooters on Craigslist. I even found one someone offered for barter.
If you live in a state that allows medical marijuana, consider that as an option.
Last edited by moderator2; 09-12-2012 at 04:13 PM.
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Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors
honestly the only advice i have to give is to make sure to get scans of the hips and back and any other bone areas. the biggest thing ive had to deal with is i didnt think that not having great right side use would hinder my left side in the long run. i didnt know there was going to be more wear and tear at a younger age. being born in the 80s CP was still thought as whats done is done. no one told me that the aging process could be bothersome to say the least. now im getting into pain mangement my physical activity has decreased im in texas and dont really know people and im scared to death of the long run. i think about my son and my wife. because of all the physical activity i engaged in in college my thoracic spine is pressing on my spinal cord and if it gets worse ive told that my legs could be immobile. my lower back is shifting and i have arthritis. ive been through the ER too many times to count because i always seem to fall or because im uninsured my pain level is so bad i just need some relief. now im scared that when i see this pain management doctor im going to get tossed aside like some drug seeker. i just want my life back and it took me so long to get medical care.. im sorry im just having a really bad day and as much as i love my wife she doesnt understand CP i know she tries but she just feels bad for me.
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