It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cerebral Palsy Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 08-02-2012, 08:42 PM   #16
Newbie
(male)
 
Join Date: Aug 2012
Posts: 2
Airframes HB User
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors

Quote:
Originally Posted by PMADrew09 View Post
Hey I'm Drew going on 26... i have mild cerebral palsy of the right side... i am losing my leg functions because of so much physical exertion i did in college.. i now am battling crippling pain in my back and legs... and if i don't get help for my back i may be in a wheel chair... i'm so young yet i feel so old... i hope things get better for you
Drew I am your age and have a two year old with mild spastic diplegia in mostly his right leg and wonder if trying to do a whole lot of pt now to get him to walk will just hurt him in the long run. Have you used baclofen or Botox. What advice or insight can you offer as we try to make the right decision for our kiddo?

 
Reply With Quote
Old 08-02-2012, 09:47 PM   #17
Member
(female)
 
KimmieDee10's Avatar
 
Join Date: Feb 2012
Location: St. George, Utah, Washington
Posts: 84
KimmieDee10 HB UserKimmieDee10 HB UserKimmieDee10 HB UserKimmieDee10 HB User
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors

I have been doing a lot of walking, and I thought it would help my legs, but it was too hard on my legs, hips, and back. Then when I went to see my doctor about it - he suggested that I go into physical therapy, and I about fell over. More walking... However, I found out that if I take it easy on my legs, they get better.



Quote:
Originally Posted by Airframes View Post
Drew I am your age and have a two year old with mild spastic diplegia in mostly his right leg and wonder if trying to do a whole lot of pt now to get him to walk will just hurt him in the long run. Have you used baclofen or Botox. What advice or insight can you offer as we try to make the right decision for our kiddo?

 
Reply With Quote
The following user gives a hug of support to KimmieDee10:
cass24 (08-25-2012)
Sponsors Lightbulb
   
Old 08-25-2012, 02:09 PM   #18
Junior Member
(female)
 
Join Date: Aug 2012
Location: Boonville, NY United States
Posts: 17
cass24 HB User
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors

I have mild spastic diplegia cerebral palsy too I was diagnosis at 3 months because I was favoring my left hand. I was born with it. I can understand how you feel with your knees. I having the same issues with my hips. I have mild bilateral hips dyplasia, the hips sockets was not completely cover or form the hips bones move around within the sockets, which hurt sometime until it pop and make a clicking noise. I want to obtain another opinion from orthopedic doctor around the area of Syracuse or Utica New York in the United States.

Last edited by cass24; 08-25-2012 at 07:42 PM.

 
Reply With Quote
Old 08-25-2012, 02:28 PM   #19
Junior Member
(female)
 
Join Date: Aug 2012
Location: Boonville, NY United States
Posts: 17
cass24 HB User
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors

Yes, I have mild spastic diplegia cerebral palsy and used a small amount of baclofen for tightness in my legs. I`m going to be reference to another doctor for Botox. My insight and experience with my own disabilities I have for you is to ensure your child continue with PT through their life and do not left the school stop pt, because they did that with me when I was almost walking. In addition, you should ensure that the pt teaches your child to property walk with their crutches they never taught me how to do that. Lastly but not the least do not left the school system control your child education and water down their work, they did that with me. They dropped me in math and it did not helped me in the long run especially when I was in college. I had to learned the math in college. I had done therapy horse back riding before, which had greatly improved my balances and hips at the time, I do not know why I stopped, but I think because I was to old

Last edited by cass24; 08-25-2012 at 07:45 PM.

 
Reply With Quote
Old 08-26-2012, 10:45 AM   #20
Newbie
(female)
 
Join Date: Aug 2012
Location: Wirral Merseyside England
Posts: 2
widdywoo HB User
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors

Hi I was diagnosed with spastic diplegia at 3 years of age I am now 48 I have noticed that my muscles have got tighter as I have got older.
I have just gone back to my specialist who now wants to lengthen my tendons
I must say I have in the past three months I have been going to the gym at least three times a week to stretch my muscles My walking has got better but with walking on my toes has caused pain in my feet and my toes curling to grip for better balance hence the now planed surgery

 
Reply With Quote
Old 08-26-2012, 10:54 AM   #21
Junior Member
(female)
 
Join Date: Aug 2012
Location: Boonville, NY United States
Posts: 17
cass24 HB User
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors

I had heel cord lengthen done when I was 3 years old, just similar to you, I walked on my toes too, but I now where hinged braces. I think I would had been diagnose later if I did not have gral mal seizures until 1992. In addition, nerve damage in my ears, and eyes sight problems.

 
Reply With Quote
Old 09-04-2012, 09:56 PM   #22
Newbie
(female)
 
Join Date: Sep 2012
Posts: 1
Sunny66 HB User
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors

I am glad to find this site regarding to CP.. I was born deaf and CP... As I get older, my legs get tired so fast! I was worried that I might no longer walk any more. I went to deaf world expo not too long ago and I know maybe 10 people that have cp (with deaf) they also said they cant stand any longer anymore as they aged. We are all in our 40s... that is so unpleasant! It seems that excerise or strengten is not the way to go? I am confused... seems hopeless? thank you...

 
Reply With Quote
Old 09-12-2012, 11:43 AM   #23
Inactive
(female)
 
Join Date: Sep 2012
Posts: 2
cookielady357 HB User
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors

Hi all,

I just found this site. I have had spastic diplegia since birth. I had achilles tendon lengthening at 7, and bilateral ITO at 15 (they cut and rotated the trochanter bones to straighten my gait) Since my eary twenties, I have had chronic pain from walking. I used asprin with codeine (bought over the counter in Canada), but stopped when I got pregnant with my son. At 27, a doctor prescribed Motrin and forearm crutches. After a few years on regular maximum doses of Motrin, I worried about kidney damage and stopped using it regularly. Walking with the forearm crutches caused damage to the nerves in my arms and hands. Walking became such a pain that I got an electric scooter at age 36. Today, I use a scooter outside and at work and a manual chair at home. I limit my walking with crutches because it causes so much pain in my arms, hands, legs, feet, and back.

The excercises that help me most are seated tai chi, leg presses, and recumbent cycling at the gym.

 
Reply With Quote
Old 09-12-2012, 11:50 AM   #24
Inactive
(female)
 
Join Date: Sep 2012
Posts: 2
cookielady357 HB User
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors

Never give up hope. I love strength training and seated tai chi. Walking and standing are overrated. What we need is the right mobility equipment to do what we want to do. You can find used electric scooters on Craigslist. I even found one someone offered for barter.

If you live in a state that allows medical marijuana, consider that as an option.

Last edited by moderator2; 09-12-2012 at 04:13 PM. Reason: please do not post a commercial website for any reason

 
Reply With Quote
Old 10-04-2012, 02:22 PM   #25
Junior Member
(male)
 
Join Date: Apr 2012
Location: Houston, TX
Posts: 17
PMADrew09 HB User
Re: I am in my late 30's and I have Cerebral Palsy. Is it possible for it to get wors

honestly the only advice i have to give is to make sure to get scans of the hips and back and any other bone areas. the biggest thing ive had to deal with is i didnt think that not having great right side use would hinder my left side in the long run. i didnt know there was going to be more wear and tear at a younger age. being born in the 80s CP was still thought as whats done is done. no one told me that the aging process could be bothersome to say the least. now im getting into pain mangement my physical activity has decreased im in texas and dont really know people and im scared to death of the long run. i think about my son and my wife. because of all the physical activity i engaged in in college my thoracic spine is pressing on my spinal cord and if it gets worse ive told that my legs could be immobile. my lower back is shifting and i have arthritis. ive been through the ER too many times to count because i always seem to fall or because im uninsured my pain level is so bad i just need some relief. now im scared that when i see this pain management doctor im going to get tossed aside like some drug seeker. i just want my life back and it took me so long to get medical care.. im sorry im just having a really bad day and as much as i love my wife she doesnt understand CP i know she tries but she just feels bad for me.
__________________
" Win the battle and eventually you WILL win the war!"

 
Reply With Quote
Reply Reply

Tags
adult, aging, cerebral palsy, legs, muscles



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Baclofen
Botox
Diclofenac
Neurontin Prevacid
  Potassium
Tegretol
Tylenol
Valium
Zanaflex




TOP THANKED CONTRIBUTORS



KimmieDee10 (11), yankeegirl (10), Spookysmommy (4), akiva (3), WMCR2001 (2), vermontcp (2), Basswife (2), whitesugar (2), Potsy (2), angelcom34 (2)

Site Wide Totals

teteri66 (1180), MSJayhawk (1013), Apollo123 (909), Titchou (856), janewhite1 (823), Gabriel (763), ladybud (755), midwest1 (670), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 07:43 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!